Stay Up to Date! Like us on Facebook  and Twitter  for the latest news and announcements    

Monthly Mito Expert Series

by GingerD

Lauren Petty uses an electric wheelchair because of balance issues. She has urinary and bowel incontinence. She’s had a g-tube for the last two years and recently got a G-J tube. She has dysautonomia. She needs medications throughout the day. Lauren has mitochondrial disease along with progressive brain atrophy and those are just some of her symptoms. "It's a lot for a typical camp to monitor," her parents, Jennifer and Bryan, say.

Feb 19, 2016 Comments: 0
by Cristy Balcells
What are fatty acid oxidation disorders, and why are they related to mitochondrial disorders?

Join us this month on Friday February 5th, 2016 with Dr. Jerry Vockley, University of Pittsburgh Cleveland Family Professor of Pediatric Research and Professor of Human Genetics at the Children's Hospital of Pittsburgh of UPMC. Dr. Vockley is the Chief of Medical Genetics and Director of the Center for Rare Disease Therapy.

Additional areas of discussion include: 

Jan 25, 2016 Comments: 0
by GingerD
10-year-old author focuses on what Mito kids can do 

“This book shows that even though children who have disabilities have their struggles, they can still do things in their own, different way.”

--Author Noah Polatty’s favorite line from a review of “Sports Impossible”

----------------

Writing is a struggle for Noah Polatty. That’s what Brandi and Chad Polatty were told about their son, who has mitochondrial disease.

Dec 22, 2015 Comments: 0
by GingerD

Dec 09, 2015 Comments: 0
by Cristy Balcells

This summary made possible by the generous support of Choate, Hall & Stewart

 

Nov 23, 2015 Comments: 0
by Cristy Balcells
What is Mitochondrial Myopathy? Learn more with Dr. Bruce Cohen on November 20th

 

Nov 10, 2015 Comments: 0
by GingerD

 

1 girl + 1 community = big differenceBrionna & family have right equation to raise awareness

Never underestimate the power of one: one girl, one mom, one family, one community, one cause.

Nov 06, 2015 Comments: 0
by Cristy Balcells
Mitochondrial dysfunction has been identified as an important factor in many diseases and conditions beyond primary mitochondrial disease, including autism, ALS, Parkinson's, Alzheimer's, and diabetes. Exposure to toxins via medication, lifestyle, and the environment may lead to mitochondrial dysfunction, cell damage and organ dysfunction. Join us this month with Dr.
Sep 17, 2015 Comments: 1
by Cristy Balcells
What is "the Mito Cocktail"?Referring to the combination of vitamins and supplements used as therapies in the treatment and management of mitochondrial disease and mitochondrial dysfunction, the "Mito Cocktail" is unique to every patient.
Sep 02, 2015 Comments: 0

Pages