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Monthly Mito Expert Series

by GingerD

Double H Ranch is a camp for children who are dealing with serious illnesses. Thanks to the camp’s amazing medical staff, Double H gives children who cannot attend conventional sleep-away camps due to medical issues a chance to go away, have fun, and be just like any other child. Just ask Susan and Mike Nadrich and their daughters, Madeline and Tyler.

“It’s one of the most amazing places. It’s magical,” said the East Amherst, NY mom.

Mar 14, 2016 Comments: 0
by GingerD

Elite athletes know how to get the most bang out of their mitochondria, often training at high elevations to force their bodies to work more efficiently in “thinner air.” Endurance increases, recovery time decreases, and mitochondrial capacities change, allowing the athletes to work harder and perform better.

Mar 13, 2016 Comments: 0
by GingerD

Lauren Petty uses an electric wheelchair because of balance issues. She has urinary and bowel incontinence. She’s had a g-tube for the last two years and recently got a G-J tube. She has dysautonomia. She needs medications throughout the day. Lauren has mitochondrial disease along with progressive brain atrophy and those are just some of her symptoms. "It's a lot for a typical camp to monitor," her parents, Jennifer and Bryan, say.

Feb 19, 2016 Comments: 0
by Cristy Balcells
What are fatty acid oxidation disorders, and why are they related to mitochondrial disorders?

Join us this month on Friday February 5th, 2016 with Dr. Jerry Vockley, University of Pittsburgh Cleveland Family Professor of Pediatric Research and Professor of Human Genetics at the Children's Hospital of Pittsburgh of UPMC. Dr. Vockley is the Chief of Medical Genetics and Director of the Center for Rare Disease Therapy.

Additional areas of discussion include: 

Jan 25, 2016 Comments: 0
by GingerD
10-year-old author focuses on what Mito kids can do 

“This book shows that even though children who have disabilities have their struggles, they can still do things in their own, different way.”

--Author Noah Polatty’s favorite line from a review of “Sports Impossible”


Writing is a struggle for Noah Polatty. That’s what Brandi and Chad Polatty were told about their son, who has mitochondrial disease.

Dec 22, 2015 Comments: 0
by GingerD

Dec 09, 2015 Comments: 0
by Cristy Balcells

This summary made possible by the generous support of Choate, Hall & Stewart


Nov 23, 2015 Comments: 0
by Cristy Balcells
What is Mitochondrial Myopathy? Learn more with Dr. Bruce Cohen on November 20th


Nov 10, 2015 Comments: 0
by GingerD


1 girl + 1 community = big differenceBrionna & family have right equation to raise awareness

Never underestimate the power of one: one girl, one mom, one family, one community, one cause.

Nov 06, 2015 Comments: 0