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Monthly Mito Expert Series

by Cristy Balcells
Join us for the annual "Mito Town Meeting" on Thursday Jan. 9, 2014 at noon EASTERN time (9 a.m. Pacific). The annual town meeting is our way of kicking off the new year by sharing all that is planned for the year. We'll hear from volunteers and representatives from a variety of programs and organizations. This is the meeting to attend if you want to get involved or get informed!

 

Jan 06, 2014 Comments: 0
by Cristy Balcells
Mitochondrial Disease Leadership Creed for Physicians, Researchers, Patient Advocates and Organization Representatives

 

Dec 16, 2013 Comments: 1
by Cristy Balcells

The story of one girl held in custody in Boston without the support of her parents due to a disagreement about her mitochondrial disease diagnosis is an example of a problem which is happening to families across the country. Join us in taking action and learn more about our advocacy efforts.

Dec 09, 2013 Comments: 0
by Cristy Balcells

How can you prepare your child for independence?

Nov 05, 2013 Comments: 0
by Cristy Balcells

Join us with Dr. Joseph Clark PhD to learn more about creatine deficiencies. Dr. Clark is a professor of neurology at the University of Cincinnati College of Medicine. His many research interests include creatine deficiency disorders, glutathione and oxidative stress, and the role of cyclocreatine in the treatment of autism spectrum disorder.

Oct 30, 2013 Comments: 0
by Cristy Balcells
Stay informed - join the Bendavia communication list to be contacted first about future clinical trials!Want to learn more? Watch the video and see the FAQs at www.mitoaction.org/bendavia
Sep 30, 2013 Comments: 1
by Cristy Balcells

Join us this Friday, September 13th 2013 at 12 PM Eastern time (9 AM Pacific) for a toll-free teleconference with Dr. Richard Boles as we learn more about how to interpret genetic test results.

Sep 10, 2013 Comments: 0
by Cristy Balcells
Join us this month on Friday May 3, 2013 with Dr. Hope Schreiber from Tufts Medical Center to talk about successful transitions for teens and young adults with mitochondrial disease.Based on a pilot study conducted by Dr. Schreiber and published in the Journal of Child Psychiatry in December 2012, we will talk about attitudes, behaviors and skills that were most common in teens and young adults with mitochondrial disease facing transition to college or independence.
Apr 25, 2013 Comments: 0
by Cristy Balcells

Patients, parents and families - please join us Friday April 5th by teleconference to learn more about this exciting mitochondrial disease clinical trial. An update from Edison Pharma on the Development of EPI-743

Mar 27, 2013 Comments: 0
by Cristy Balcells

It's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get more out of every appointment? More importantly, how can you get what you need from those interactions?

Feb 21, 2013 Comments: 0

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