Stay Up to Date! Like us on Facebook  and Twitter  for the latest news and announcements    

Monthly Mito Expert Series

by Cristy Balcells
Join us this month with Dr. Andrew Nierenberg from Massachusetts General Hospital to learn more about Psychiatric Disorders in Mitochondrial Diseases and Mitochondrial Dysregulation in Psychiatric Disorders.
Sep 26, 2014 Comments: 0
by GingerD

KINGSPORT, TN -- The Castle family’s goals are simple: raise awareness about mitochondrial disease, move forward, and live.

They count their blessings and thank God for all that they have, especially Cooper. “Cooper is here because of the hand of the Lord,” Chris Castle said about his 6-year-old son.

Cooper coded when he was 12 hours old, starting this Fall Branch, TN, family’s mitochondrial disease odyssey. 

Sep 11, 2014 Comments: 0
by GingerD

Aug 25, 2014 Comments: 0
by GingerD

BALTIMORE, MD —Charlie Bainbridge is a real daredevil. The Catonsville, MD, boy who is battling mitochondrial disease is the inspiration behind “Charlie B's Daredevils,” a team of 22 walkers who will return for the fifth consecutive year to walk in MitoAction’s Energy Walk and 5K in South Boston, MA, alongside other families and patients affected by mitochondrial disease.

Aug 24, 2014 Comments: 0
by GingerD

Stephanie Deady is a little apprehensive about attending her first MitoAction Energy Walk & 5K. It’s been a whirlwind year since her son, Logan, was diagnosed with mitochondrial disease and she still hasn’t processed it all.

“Being around so many people with similar issues makes it so real,” said the North Providence, RI, mom.

“I wake up and I just do it. I just move forward, because I have to. When I stop and think about it, the tears will come. I want to meet other people, but I don’t want to cry.”

Aug 20, 2014 Comments: 0
by GingerD

DERRY, NH –Amy and Jason Marquis’ daughter was given a death sentence. Riley, also known as Little Miss Roo, has Leigh’s Disease, one of the most devastating forms of mitochondrial disease.

Aug 11, 2014 Comments: 0
by GingerD

Every year, Rita Cerruti makes more than 300 mitochondrial disease awareness ribbons to hand out at the MitoAction Energy Walk & 5K. And every year, they are gone in minutes!

It’s just one way Rita, 82, a lifelong crafter, raises awareness about the disease that affects her daughter, Lisa, team captain of LC’s MitoBusters. “Making these things is my way to raise awareness,” Rita said.

Aug 08, 2014 Comments: 0
by GingerD

At summer camp, Stephen Nielsen is just one of the guys … telling jokes, talking with friends, fishing, boating, and doing archery.

“Most kids just want to be seen as normal and a part of the crowd. But you don’t always get that when you have something different,” said Diane, Stephen’s mom.

Stephen’s mitochondrial disease makes him different from most – except at camp.

Aug 07, 2014 Comments: 0
by GingerD
Jubinvilles celebrate 10 years of MitoAction walks

Lori Jubinville of Chicopee, MA, was diagnosed with mitochondrial disease in June 2005. In September 2005, Lori and husband Mark attended the first MitoAction Energy Walk. This year, along with MitoAction, the couple will mark 10 years of walking to raise awareness about this devastating disease.

Aug 06, 2014 Comments: 0
by GingerD

One little girl is using the colors of the rainbow to raise awareness about mitochondrial disease, the disorder that affects her. Alyssa Curley, the heart and soul of Team Lissy Loo of the MitoAction Energy Walk & 5K, decided to make and sell rainbow loom bracelets to benefit MitoAction.

Aug 06, 2014 Comments: 0