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Monthly Mito Expert Series

by Cristy Balcells
Join us this month with education chair Kirsten Casale and executive director and author Cristy Balcells to answer parent's most commonly asked questions about helping kids with Mito be successful in school.Kids with Mito are complex. Navigating the educational system is also complex. Often parents are wonderful advocates but don't know or understand the law.
Sep 03, 2012 Comments: 0
by Cristy Balcells
Tools for Testing Mitochondrial Disorders: The Latest Advances in Genetics and Genomics

Join us on Friday August 3rd, 2012 with guest speaker Dr. Richard Boles from Children's Hospital Los Angeles and Courtagen Life Sciences, Inc. to discuss:

Jul 23, 2012 Comments: 0
by Cristy Balcells
Join us this month with Dr.
May 29, 2012 Comments: 0
by Cristy Balcells
Frustrated with the run-around from health insurance companies? Join us this month with as we discuss strategies for advocating for the diagnosis, management, and treatment of your mitochondrial disease:

- Questions to ask when you receive a health insurance denial

- How to write and get help with an appeal

Apr 27, 2012 Comments: 0
by Cristy Balcells

Interpreting Common Lab Tests & Values 101: A Lesson for Mito Patients & Families

LISTEN TO THE RECORDING OF THIS MEETING HERE

Apr 02, 2012 Comments: 0
by Cristy Balcells
Join us this month with Dr. Richard Haas from University of California San Diego to discuss:Practical Approaches to a Mito Diagnosis

LISTEN TO THE RECORDING OF THIS MEETING HERE

Feb 28, 2012 Comments: 0
by Cristy Balcells

During a time when families with children with mitochondrial disease may face accusations of medical child abuse or Munchausen's Syndrome by proxy, it is incredibly important to advocate responsibly and communicate effectively. Join us this month with guest speaker Mannie Taimuty-Loomis, BS OD, MAHED and Executive Director of the Jonah & The Whale Foundation, Inc. to learn more and discuss:

Jan 31, 2012 Comments: 0
by Cristy Balcells
Read below for a recap of the "2012 Mito Town Meeting"Everyone - parents, patients, family members and interested volunteers - is encouraged to call in and participate as we discuss important topics for the year.
Jan 05, 2012 Comments: 3
by GingerD

For a pdf version of this story, please click here.

      Paul Harty and Eric Harty are not only first cousins; they are friends. Eric looks up to Paul, who is older. Paul admires Eric's artistic ability. They are both musicians. They support each other. They are as close as brothers. 

Dec 15, 2011 Comments: 0
by GingerD

 I have lost so much connection with the world and other people.  The deepest loss is with my family.  Sometimes my perception of their indifference to me becomes intense.  In a nutshell my family values most highly success, prestige, and status.  Success to them means being number one, a winner.  They work hard to stay on top.  They all base their value on professional competence and aim at being the best at what they do, mainly for prestige for being at the top of their profession. 

Nov 01, 2011 Comments: 8

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