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Advocacy Podcast Series

Advocacy Podcast

MitoAction brings the best of the advocacy world to the mitochondrial disease community in its Advocacy Podcast Series.  From overviews of disability law and public benefits to the latest information on state and federal legislative activities, the Advocacy Podcast Series keeps patients and families in the know about important and highly relevant issues.

Podcast Library

Advocacy Strategies

Becoming a Great Advocate: Advice for Complex Patients and Families, with Mark Korson, MD and Maggie Orr, RN, March 30, 2010
Get More from Every Doctor's Appointment, with Cristy Balcells, RN MSN, and Kathy Rivers, MD, March 1, 2013
Advocating Responsibly and Communicating Effectively, with Mannie Taimuty-Loomis, MAHED, LBS, February 3, 2012

Disability Law  

Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) with Annette Hines, Esq. of Special Needs Law Group of Massachusetts and Tai Venuti, MPH of Allsup Inc., August 7, 2015

Education Law and Advocacy

Back to School Tips with Annette Hines, Esq. and Cristy Balcells, RN MSN, August 26, 2015

School Tips for Kids with Mito with Kirsten Casale and Cristy Balcells, RN MSN, September 7, 2012

Estate Planning

Basics of Estate Planning and Special Needs Trusts with Annette Hines, Esq. of Special Needs Law Group of Massachusetts, May 2015

Special Needs Planning with Jack Raycroft, a financial planner at Baystate Financial Services and a MetDESK Specialist with MetLife's Division of Estate Planning for Special Kids, March 6, 2009

Insurance

9 Tips to Ensure Your Insurer Pays Up, May 4, 2012

Transition Skills

Transition for Teens and Young Adults with Mitochondrial Disease with Hope Schreiber, MD, May 3, 2013 (written summary only)