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March 2016

by GingerD
Join us Friday, April 1, 2016 at Noon (EST)/9 a.m. (PST) as Dr. Amy Goldstein provides an update on the Mitochondrial Medicine Society.Areas of discussion include: Transplantation in Mito patientsStroke protocol for MELASStandards of care for Mito patientsCenters of Excellence and the need for community involvement/input

 

Mar 28, 2016 Comments: 0
by Christine Cox

As patients or caregivers, it is frightening to think about what would happen if we could not advocate for ourselves.  Fortunately, there are legal documents that can be used to communicate our wishes under such circumstances.  This type of legal preparation is called incapacity planning and guardianship.  

Mar 18, 2016 Comments: 0
by GingerD

Double H Ranch is a camp for children who are dealing with serious illnesses. Thanks to the camp’s amazing medical staff, Double H gives children who cannot attend conventional sleep-away camps due to medical issues a chance to go away, have fun, and be just like any other child. Just ask Susan and Mike Nadrich and their daughters, Madeline and Tyler.

“It’s one of the most amazing places. It’s magical,” said the East Amherst, NY mom.

Mar 14, 2016 Comments: 0
by GingerD

Elite athletes know how to get the most bang out of their mitochondria, often training at high elevations to force their bodies to work more efficiently in “thinner air.” Endurance increases, recovery time decreases, and mitochondrial capacities change, allowing the athletes to work harder and perform better.

Mar 13, 2016 Comments: 0