Caring for the Whole Patient

by Cristy Balcells

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Caring for the whole patientFor someone who lives with mitochondrial disease, understanding the "big picture" is important.


LISTEN TO THE RECORDING OF THIS MEETING HERE!

Naturally, the symptoms and issues related to one's mitochondrial disease diagnosis are not isolated to one part of the body, and consideration of the impact that these symptoms have on the "whole person" is important. 

Join us this month with Dr. Mary Kay Koenig, a pediatric neurologist at Children’s Memorial Hermann Hospital and assistant professor in the Department of Pediatrics, Division of Child and Adolescent Neurology, at the University of Texas Medical School at Houston.  Dr. Koenig is a member of the American Academy of Pediatrics, the American Academy of Neurology and the Child Neurology Society. She is a board member of the Houston chapter of the United Mitochondrial Disease Foundation. 

Dr. Koenig’s research interests are focused on mitochondrial disorders, neuro-metabolic disorders, autoimmune epilepsy, and neuro-genetic disorders.

Dr. Koenig will explore the importance of caring for the whole patient when managing mitochondrial disease. How does each organ system affect others when looking at the "whole" person? For example, can treating anemia improve sleep? Can appropriate management of epilepsy improve a child's ability to learn and attend school?

Please join us!

MitoAction meeting details

Friday September 3rd, 2010

Noon eastern US time (find your time zone)

by toll-free teleconference

1-866-414-2828, participant code 017921# All are welcome!

For help on participating if you are deaf or hearing-impaired, click here

This meeting will be recorded and posted here along with a summary following the meeting.  To find summaries from other presentations, go to the blog page

5
Average: 5 (1 vote)
mitoscottie's picture

This looks like an

Submitted by mitoscottie on Tue, 08/31/2010 - 8:38pm.

This looks like an interesting topic for Mitochondrial Awareness Week!  It isn't well understood how our body systems are interrelated: when something isn't working properly, everything is affected and when something is addressed, improvement can be global!

mitoscottie's picture

Dr Koenig did an excellent

Submitted by mitoscottie on Sun, 09/05/2010 - 1:06am.

Dr Koenig did an excellent job of explaining Mitochondrial disease and how and why it affects everyone differently.  She gave many excellent tips and ideas for coping for patients and parents.  She spoke as if she understood what it is like to live in the Mitochondrial world.

She answered every question after her presentation without hesitation.  I was impressed!