It's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get more out of every appointment? More importantly, how can you get what you need from those interactions?
Importance of Community: Philip Borden, MitoAction Board President
What should you do when you or your child is sick?
Being sick, even with a cold or a simple virus, is tough for most children and adult Mito patients. Many people with mitochondrial disease are "wiped out" when ill, and can take much longer to recover. Join us Friday December 7th, 2012 for an exciting teleconference with Dr. Mark Korson as we discuss what to do when a Mito patient is sick at home:
Join us this month on Friday November 2nd at 12 pm EDT to learn more about exercise and physical therapy options for mitochondrial disease patients. Children and adults with Mito face a tough dilemma - we hear exercise may be helpful for those with mitochondrial disease, but exercise can be painful or downright impossible due to fatigue, muscle weakness, and other symptoms.
- Questions to ask when you receive a health insurance denial
- How to write and get help with an appeal
For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease. Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.