It's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get more out of every appointment? More importantly, how can you get what you need from those interactions?
Adult Patients
by Cristy Balcells
Join us for the annual "Mito Town Meeting," Friday, Jan. 4, 2013 at noon EASTERN time. The annual town meeting is our way of kicking off the new year by sharing all that is planned for the year. We'll hear from volunteers and representatives from a variety of programs and organizations. This is the meeting to attend if you want to get involved or get informed!
Importance of Community: Philip Borden, MitoAction Board President
by Cristy Balcells
What should you do when you or your child is sick?
Being sick, even with a cold or a simple virus, is tough for most children and adult Mito patients. Many people with mitochondrial disease are "wiped out" when ill, and can take much longer to recover. Join us Friday December 7th, 2012 for an exciting teleconference with Dr. Mark Korson as we discuss what to do when a Mito patient is sick at home:
by Cristy Balcells
Join us this month on Friday November 2nd at 12 pm EDT to learn more about exercise and physical therapy options for mitochondrial disease patients. Children and adults with Mito face a tough dilemma - we hear exercise may be helpful for those with mitochondrial disease, but exercise can be painful or downright impossible due to fatigue, muscle weakness, and other symptoms.
by Cristy Balcells
Frustrated with the run-around from health insurance companies? Join us this month with as we discuss strategies for advocating for the diagnosis, management, and treatment of your mitochondrial disease:
- Questions to ask when you receive a health insurance denial
- How to write and get help with an appeal
by Cristy Balcells
Too Hot, Too Cold, Too High, Too Low - Blame it on Dysautonomia!
by Cristy Balcells
Mito Cocktail Financial Assistance author: Heidi Coleman, "Cut the Red Tape" advocate
by Cristy Balcells
How can children, teens and adults with mitochondrial disease EXERCISE, especially if fatigue and exercise intolerance are hallmark symptoms of the disease? Join us this month with Metabolic Nurse Educator Margaret O'Riley from Vancouver, British Columbia to learn more about the research - and practical solutions - surrounding exercise and mitochondrial disease.
by Cristy Balcells
For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease. Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.
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