Stay Up to Date! Like us on Facebook  and Twitter  for the latest news and announcements    

Adult Patients

by Cristy Balcells

Join us this month on Friday November 2nd at 12 pm EDT to learn more about exercise and physical therapy options for mitochondrial disease patients. Children and adults with Mito face a tough dilemma - we hear exercise may be helpful for those with mitochondrial disease, but exercise can be painful or downright impossible due to fatigue, muscle weakness, and other symptoms.

Oct 26, 2012 Comments: 0
by Cristy Balcells
Frustrated with the run-around from health insurance companies? Join us this month with as we discuss strategies for advocating for the diagnosis, management, and treatment of your mitochondrial disease:

- Questions to ask when you receive a health insurance denial

- How to write and get help with an appeal

Apr 27, 2012 Comments: 0
by Cristy Balcells
Too Hot, Too Cold, Too High, Too Low - Blame it on Dysautonomia!
Apr 25, 2011 Comments: 8
by Cristy Balcells
Mito Cocktail Financial Assistance author: Heidi Martin-Coleman, "Cut the Red Tape" advocate
Dec 06, 2010 Comments: 2
by Cristy Balcells
How can children, teens and adults with mitochondrial disease EXERCISE, especially if fatigue and exercise intolerance are hallmark symptoms of the disease?  Join us this month with Metabolic Nurse Educator Margaret O'Riley from Vancouver, British Columbia to learn more about the research - and practical solutions - surrounding exercise and mitochondrial disease.

Oct 22, 2010 Comments: 4
by Cristy Balcells

For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease.  Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.

Jul 06, 2010 Comments: 3
by Cristy Balcells

June 4, 2010

May 17, 2010 Comments: 12
by Cristy Balcells
Apr 14, 2010 Comments: 4
by Cristy Balcells
Becoming a great advocate: Advice for parents & patients with complex needs

Join us this month with Mark Korson MD and Maggie Orr RN MSN MEd from Tufts Floating Hospital for Children in Boston, MA to discuss the do's and don'ts of being an advocate.Listen to this teleconference recording here

Mar 30, 2010 Comments: 0
by Cristy Balcells

Depression, schizophrenia, bipolar disease, and other psychiatric diseases - what is the connection for patients with mitochondrial disease?


Jan 13, 2010 Comments: 1


Subscribe to Adult Patients