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Adult Patients

by Cristy Balcells

December 2009

Are you OVERWHELMED?

Click here to listen to the free audio recording of this broadcast here or in iTunes

SPECIAL OFFER UNTIL JANUARY 31, 2010!

Dec 02, 2009 Comments: 6
by Cristy Balcells
How do you cope with the unpredictable, invisible disease? TO LISTEN TO THE RECORDING OF THIS MEETING,  CLICK HERE

 

Sep 30, 2009 Comments: 0
by Cristy Balcells
CELEBRATE INTERNATIONAL MITOCHONDRIAL DISEASE AWARENESS WEEK

September 20 - September 26, 2009 is International Mitochondrial Disease Awareness Week. During this week we renew our commitment to educate, support and advocate on behalf of mitochondrial disease patients and their families.

Sep 21, 2009 Comments: 0
by Cristy Balcells
Cristy's note - Rob from Bloomberg News called me this week and I connected him with Vamsi Mootha for an expert opinion.  What do YOU think?  Post a comment- share your thoughts! Gene Mix in Monkeys Fixes Defects, Opens New Ethics Debate Share |
Aug 27, 2009 Comments: 3
by Cristy Balcells
To work or not to work...that is the question

Many adults with mitochondrial disease face a difficult decision about how to financially support themselves while balancing the energy demands and potential health toll of having a job.  Working also gives many people more than just a paycheck; it can be a way to find gratification, and may be an important part of a person's identity.

Jul 30, 2009 Comments: 0
by Cristy Balcells
Help! G-tubes, J-tubes, TPN - Where do we begin?

June 5th, 2009

May 27, 2009 Comments: 0
by Cristy Balcells
Palliative care & hospice: Quality of Life Dr. Pat O'Malley from Massachusetts General Hospital talks about long-term care and quality of life support for adults and children with mitochondrial disease.

Mar 26, 2009 Comments: 2
by Cristy Balcells
March MITO Meeting: Planning for your future with Mito... a workshop for parents & adult patients Monthly International Teleconference Outreach

Listen to the audio recording of this meeting

Feb 25, 2009 Comments: 0
by Cristy Balcells

Congratulations Rocco on making it to the World Series! We continue to offer our encouragement and support.

 

Original Post August 8, 2008

Tampa Rays MLB player Rocco Baldelli Living with Mitochondrial Disease

He's in the news. His symptoms are vague. He looks tired.

Aug 08, 2008 Comments: 2
by admin

Is Exercise a New Year's Resolution for People Affected by Mitochondrial Diseases?

NEW! Click here to download the Mitochondrial Myopathy Exercise Guide from Vancouver Coastal Health

Jan 05, 2008 Comments: 8

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