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Join us on Friday, March 6, 2015 with Dr. Sumit Parikh, Director of the Cleveland Clinic Neurogenetics, Metabolic and Mitochondrial Disease program, and past president of the Mitochondrial Medicine Society. Learn more about the 2014-2015 publications based on collaborations and consensus surveys completed by the Mitochondrial Medicine Society. The landmark series of publications is the first to address existing standards of care and most common approaches to diagnosis, use of supplements and symptom management by leaders in mitochondrial medicine around the US.
It's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get more out of every appointment? More importantly, how can you get what you need from those interactions?
- Questions to ask when you receive a health insurance denial
- How to write and get help with an appeal
During a time when families with children with mitochondrial disease may face accusations of medical child abuse or Munchausen's Syndrome by proxy, it is incredibly important to advocate responsibly and communicate effectively. Join us this month with guest speaker Mannie Taimuty-Loomis, BS OD, MAHED and Executive Director of the Jonah & The Whale Foundation, Inc. to learn more and discuss:
Supporting the brothers and sisters of kids with special needs
LISTEN TO THE RECORDING OF THIS MEETING HERE!
Join us this month with Mark Korson MD and Maggie Orr RN MSN MEd from Tufts Floating Hospital for Children in Boston, MA to discuss the do's and don'ts of being an advocate.Listen to this teleconference recording here