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Education

by GingerD

This is a joint message between MitoAction, UMDF, and the Foundation for Mitochondrial Medicine for the benefit of the mitochondrial disease community.

Patients, parents, and families -- please join us Tuesday, Dec. 6, 2016 at Noon EST (9 a.m. PST) by teleconference for a discussion of data from Stealth BioTherapeutics' Mitochondrial Myopathy clinical trial.

Nov 10, 2016 Comments: 0
by Christine Cox

Please join us on Wednesday, April 20 for the next installment of the MitoAction Advocacy Podcast Series. 

Apr 13, 2016 Comments: 0
by Cristy Balcells
It's that time of year ... summer comes to a close and children everywhere are going back to school!
Aug 20, 2015 Comments: 0
by Cristy Balcells
Join us for the annual "Mito Town Meeting" on Thursday Jan. 9, 2014 at noon EASTERN time (9 a.m. Pacific). The annual town meeting is our way of kicking off the new year by sharing all that is planned for the year. We'll hear from volunteers and representatives from a variety of programs and organizations. This is the meeting to attend if you want to get involved or get informed!

 

Jan 06, 2014 Comments: 0
by Cristy Balcells
Join us this month on Friday May 3, 2013 with Dr. Hope Schreiber from Tufts Medical Center to talk about successful transitions for teens and young adults with mitochondrial disease.Based on a pilot study conducted by Dr. Schreiber and published in the Journal of Child Psychiatry in December 2012, we will talk about attitudes, behaviors and skills that were most common in teens and young adults with mitochondrial disease facing transition to college or independence.
Apr 25, 2013 Comments: 0
by Cristy Balcells
Join us this month with education chair Kirsten Casale and executive director and author Cristy Balcells to answer parent's most commonly asked questions about helping kids with Mito be successful in school.Kids with Mito are complex. Navigating the educational system is also complex. Often parents are wonderful advocates but don't know or understand the law.
Sep 03, 2012 Comments: 0
by Cristy Balcells
Is it time for school already?

 

Aug 31, 2009 Comments: 0
by Cristy Balcells
March MITO Meeting: Planning for your future with Mito... a workshop for parents & adult patients Monthly International Teleconference Outreach

Listen to the audio recording of this meeting

Feb 25, 2009 Comments: 0
by Cristy Balcells

JANUARY 2009

Listen to the recording of this meeting here

Jan 05, 2009 Comments: 0
by kayjay

It is with great pride and sincerity that I ask all members, families and friends of MitoAction to please congratulate and recognize the following mitochondrial disease patients, moms, care providers and supporters of MitoAction who so quietly and humbly volunteered 1000's of hours so that Mito Families, could have a place to go to when they wanted to obtain more information about Mitochondrial Disease and educating their children and loved ones.&nbs

Jun 02, 2008 Comments: 0

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