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Legal Advocacy

by Christine Cox

Please join us on Wednesday, April 20 for the next installment of the MitoAction Advocacy Podcast Series. 

Apr 13, 2016 Comments: 0
by Christine Cox

On Monday, July 20, 2015, MitoAction submitted a comment to the FDA on its proposed Memorandum of Understanding concerning the distribution of products from compounding pharmacies.  The proposed Memorandum of Understanding would substantially limit the ability of compounding pharmacies to distribute compounded prescriptions across state lines.  Since many Mito families rely upon high-quality compounding pharmacies that often are located in states other than their own for preparation of the Mito cocktail and other supplements, the proposed Memorandum of Understanding would have a s

Jul 22, 2015 Comments: 0
by Christine Cox

Please join us on Friday, August 7, 2015 as we welcome two experts in the field of Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) provide an overview of these public benefits for Mito patients.  Topics to be covered in this conference call include:

Overview of SSI and SSDI programs;

The differences between SSI and SSDI;

Social Security’s definition of disability as it pertains to mitochondrial disease;

Jul 15, 2015 Comments: 0
by Christine Cox

Please join MitoAction as we welcome Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts. Ms. Hines will be speaking Wednesday, May 27, 2015 at 12 p.m. on the basics of estate planning and special needs trusts laws in the U.S. Questions to be answered include:

May 21, 2015 Comments: 0
by Cristy Balcells
March MITO Meeting: Planning for your future with Mito... a workshop for parents & adult patients Monthly International Teleconference Outreach

Listen to the audio recording of this meeting

Feb 25, 2009 Comments: 0
by admin

Wendy Helmka understands how important advance directives are for an adult patient with mitochondrial disease."The doctors told me that I would have died if I had not had the advance directive, or if I had not been able to go home with 24 hour nursing care. I would have been put in a nursing home where medicines used to treat my symptoms would have damaged my mitochondria even more, and may have killed me."

Feb 26, 2008 Comments: 0
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