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Living with Mito

by GingerD
Nov 30, 2016 Comments: 0
by GingerD
Join us on Friday, Aug. 5 at noon EDT as patient advocate Kristi Wees discusses medical homes for Mito patients.Topics include:
Jul 25, 2016 Comments: 0
by Cristy Balcells
It's that time of year ... summer comes to a close and children everywhere are going back to school!
Aug 20, 2015 Comments: 0
by Christine Cox

On Monday, July 20, 2015, MitoAction submitted a comment to the FDA on its proposed Memorandum of Understanding concerning the distribution of products from compounding pharmacies.  The proposed Memorandum of Understanding would substantially limit the ability of compounding pharmacies to distribute compounded prescriptions across state lines.  Since many Mito families rely upon high-quality compounding pharmacies that often are located in states other than their own for preparation of the Mito cocktail and other supplements, the proposed Memorandum of Understanding would have a s

Jul 22, 2015 Comments: 0
by GingerD

Aug 25, 2014 Comments: 0
by Cristy Balcells

What is the impact of illness or infection on a patient with mitochondrial disease?

Jul 24, 2014 Comments: 0
by Christine Cox

As media coverage of the Justina Pelletier case has grown, so has the misconception that mitochondrial disease is closely correlated with medical child abuse and its predecessor diagnosis, Munchausen’s Syndrome by Proxy. On behalf of MitoAction and the mitochondrial disease patients we represent, we are extremely troubled by this development and wish to highlight the obvious differences between mitochondrial disease and medical child abuse.

Apr 16, 2014 Comments: 0
by Cristy Balcells

Dysmotility: abnormal contractions of the bowel, which slows or impairs digestive emptying and may cause symptoms such as pain, nausea, bloating, diarrhea, constipation or vomiting. Dysmotility can be caused by abnormalities of the muscles of the intestine (myopathy) or by abnormalities in the nerves in the intestine which control the muscles (neuropathy). For children and adults with mitochondrial disease, dysmotility is common and can be due to muscle myopathy and/or autonomic nervous system dysfunction (dysautonomia).

Feb 27, 2014 Comments: 0
by Cristy Balcells
Edison Pharma’s partnership offers hope for Mito community

 

Feb 03, 2014 Comments: 0
by Cristy Balcells
Join us for the annual "Mito Town Meeting" on Thursday Jan. 9, 2014 at noon EASTERN time (9 a.m. Pacific). The annual town meeting is our way of kicking off the new year by sharing all that is planned for the year. We'll hear from volunteers and representatives from a variety of programs and organizations. This is the meeting to attend if you want to get involved or get informed!

 

Jan 06, 2014 Comments: 0

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