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Medical

by Cristy Balcells

What is the impact of illness or infection on a patient with mitochondrial disease?

Jul 24, 2014 Comments: 0
by Cristy Balcells
Understanding the mechanisms of mitochondrial deafnessJoin us this month with Dr. Peter Kullar, Clinical Research Fellow at the Wellcome Trust Research Centre for Mitochondrial Disease at Newcastle University (UK) to learn about mitochondrial disease and hearing loss.
Apr 02, 2014 Comments: 0
by Cristy Balcells
Edison Pharma’s partnership offers hope for Mito community

 

Feb 03, 2014 Comments: 0
by Cristy Balcells
Stay informed - join the Bendavia communication list to be contacted first about future clinical trials!Want to learn more? Watch the video and see the FAQs at www.mitoaction.org/bendavia
Sep 30, 2013 Comments: 1
by Cristy Balcells
Join us this month on Friday May 3, 2013 with Dr. Hope Schreiber from Tufts Medical Center to talk about successful transitions for teens and young adults with mitochondrial disease.Based on a pilot study conducted by Dr. Schreiber and published in the Journal of Child Psychiatry in December 2012, we will talk about attitudes, behaviors and skills that were most common in teens and young adults with mitochondrial disease facing transition to college or independence.
Apr 25, 2013 Comments: 0
by Cristy Balcells

Patients, parents and families - please join us Friday April 5th by teleconference to learn more about this exciting mitochondrial disease clinical trial. An update from Edison Pharma on the Development of EPI-743

Mar 27, 2013 Comments: 0
by Cristy Balcells

It's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get more out of every appointment? More importantly, how can you get what you need from those interactions?

Feb 21, 2013 Comments: 0
by Cristy Balcells

What should you do when you or your child is sick?

Being sick, even with a cold or a simple virus, is tough for most children and adult Mito patients. Many people with mitochondrial disease are "wiped out" when ill, and can take much longer to recover. Join us Friday December 7th, 2012 for an exciting teleconference with Dr. Mark Korson as we discuss what to do when a Mito patient is sick at home:

Nov 30, 2012 Comments: 0
by Cristy Balcells

Join us this month on Friday November 2nd at 12 pm EDT to learn more about exercise and physical therapy options for mitochondrial disease patients. Children and adults with Mito face a tough dilemma - we hear exercise may be helpful for those with mitochondrial disease, but exercise can be painful or downright impossible due to fatigue, muscle weakness, and other symptoms.

Oct 26, 2012 Comments: 0
by Cristy Balcells

Patients, parents and families - please join us Friday October 5th 2012 by teleconference to learn more about this exciting mitochondrial disease clinical trial.

 LISTEN TO THE RECORDING OF THIS MEETING NOW

Oct 02, 2012 Comments: 0

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