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Meeting Announcements

by Cristy Balcells
How can a service dog help a child or adult patient with mitochondrial disease?

May 27, 2011 Comments: 2
by Cristy Balcells
Too Hot, Too Cold, Too High, Too Low - Blame it on Dysautonomia!
Apr 25, 2011 Comments: 8
by Cristy Balcells
Join us this month to learn all about use of IV's for hydration, nutrition and medications. When are they used? How? And what are potential complications?

Download the Slides for this Presentation here

Listen to the recording here!

 

Mar 21, 2011 Comments: 0
by morganbt
"I Can't Sleep!" Sleep disorders: Understanding the cause, effect and treatments for people with mitochondrial disease

LISTEN TO THE AUDIO RECORDING OF THIS MEETING HERE!

Feb 28, 2011 Comments: 1
by Cristy Balcells
Spotlight on Genetics of Mitochondrial Disease: How Mito is inherited, nDNA vs mtDNA, family risk and more.

LISTEN TO THE RECORDING OF THIS MEETING

Jan 19, 2011 Comments: 1
by Cristy Balcells
How can children, teens and adults with mitochondrial disease EXERCISE, especially if fatigue and exercise intolerance are hallmark symptoms of the disease?  Join us this month with Metabolic Nurse Educator Margaret O'Riley from Vancouver, British Columbia to learn more about the research - and practical solutions - surrounding exercise and mitochondrial disease.

Oct 22, 2010 Comments: 4
by Cristy Balcells

Supporting the brothers and sisters of kids with special needs

Sep 28, 2010 Comments: 0
by Cristy Balcells
For someone who lives with mitochondrial disease, understanding the "big picture" is important.

LISTEN TO THE RECORDING OF THIS MEETING HERE!

Aug 31, 2010 Comments: 2
by Cristy Balcells
Use of Hyperbaric Oxygen Therapy (HBOT) in patients with mitochondrial diseasewithDr. Bruce Cohen, from the Cleveland Clinic
Jul 23, 2010 Comments: 7
by Cristy Balcells

For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease.  Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.

Jul 06, 2010 Comments: 3

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