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Meeting Announcements

by Cristy Balcells
Palliative care & hospice: Quality of Life Dr. Pat O'Malley from Massachusetts General Hospital talks about long-term care and quality of life support for adults and children with mitochondrial disease.

Mar 26, 2009 Comments: 2
by Cristy Balcells
March MITO Meeting: Planning for your future with Mito... a workshop for parents & adult patients Monthly International Teleconference Outreach

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Feb 25, 2009 Comments: 0
by Cristy Balcells

 

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Jan 29, 2009 Comments: 6
by Cristy Balcells

JANUARY 2009

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Jan 05, 2009 Comments: 0
by Cristy Balcells

MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH

Dec 22, 2008 Comments: 3
by Cristy Balcells

MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH

Oct 01, 2008 Comments: 0
by Cristy Balcells

Listen to the recording of this meeting 

September kicks off an exciting month for the mitochondrial disease community.  International Mitochondrial Disease Awareness week (September 21-28) inspires many to renew their commitment to actively raise awareness and support for the many adults and children who are affected by mitochondrial disease.

Aug 20, 2008 Comments: 0
by Cristy Balcells

MITO Meeting: MONTHLY INTERNATIONAL TELECONFERENCE OUTREACH

Join us this month with Dr. Fran Kendall from Emory University Department of Human Genetics as we dig deeper into confusion surrounding two components of the "Mito Cocktail": Coenzyme Q10 and Creatine.

Jul 29, 2008 Comments: 0
by Cristy Balcells

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When a person is diagnosed with cancer, several keywords probably come to mind. Chemotherapy, metastasis, remission, radiation...and pain.

What are the keywords we automatically refer to when we hear "mitochondrial disease"?

"Mito...what?"

Jun 30, 2008 Comments: 0
by Cristy Balcells

Many adults and children with mitochondrial disease find that they are overwhelmed by multiple specialists. The cardiologist, the gasteroenterologist, the endocrinologist, the neurologist as well as the pediatrician and the metabolic specialist are all expected to coordinate care for the patient and his or her confusing array of symptoms. In reality, the patient (or parent) too often becomes the gatekeeper of all the information, and are frequently frustrated by the challenges of coordinating multiple specialists.

May 21, 2008 Comments: 0

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