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by GingerD

Aug 25, 2014 Comments: 0
by Christine Cox

As media coverage of the Justina Pelletier case has grown, so has the misconception that mitochondrial disease is closely correlated with medical child abuse and its predecessor diagnosis, Munchausen’s Syndrome by Proxy. On behalf of MitoAction and the mitochondrial disease patients we represent, we are extremely troubled by this development and wish to highlight the obvious differences between mitochondrial disease and medical child abuse.

Apr 16, 2014 Comments: 0
by GingerD
A weekend of education, support, and awareness

MitoAction hosted the Mitochondrial Disease Clinical Conference LA and the LA Mito Patient & Family Social on Feb. 8-9, 2014.It was an amazing weekend for everyone involved!

Feb 13, 2014 Comments: 0
by Cristy Balcells
Edison Pharma’s partnership offers hope for Mito community

 

Feb 03, 2014 Comments: 0
by Cristy Balcells
Join us for the annual "Mito Town Meeting" on Thursday Jan. 9, 2014 at noon EASTERN time (9 a.m. Pacific). The annual town meeting is our way of kicking off the new year by sharing all that is planned for the year. We'll hear from volunteers and representatives from a variety of programs and organizations. This is the meeting to attend if you want to get involved or get informed!

 

Jan 06, 2014 Comments: 0
by Cristy Balcells
Join us for the annual "Mito Town Meeting," Friday, Jan. 4, 2013 at noon EASTERN time. The annual town meeting is our way of kicking off the new year by sharing all that is planned for the year. We'll hear from volunteers and representatives from a variety of programs and organizations. This is the meeting to attend if you want to get involved or get informed!

 

Importance of Community: Philip Borden, MitoAction Board President

Jan 02, 2013 Comments: 0
by Cristy Balcells

For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease.  Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.

Jul 06, 2010 Comments: 3
by Cristy Balcells
CELEBRATE INTERNATIONAL MITOCHONDRIAL DISEASE AWARENESS WEEK

September 20 - September 26, 2009 is International Mitochondrial Disease Awareness Week. During this week we renew our commitment to educate, support and advocate on behalf of mitochondrial disease patients and their families.

Sep 21, 2009 Comments: 0
by Cristy Balcells
Cristy's note - Rob from Bloomberg News called me this week and I connected him with Vamsi Mootha for an expert opinion.  What do YOU think?  Post a comment- share your thoughts! Gene Mix in Monkeys Fixes Defects, Opens New Ethics Debate Share |
Aug 27, 2009 Comments: 3
by Cristy Balcells
ABC's Extreme Home Makeover & the Boston Bruins Foundation work with MitoAction for the makeover of the Tufts Medical Center Metabolism Clinic

July 2009, Boston MA

Jul 06, 2009 Comments: 0

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