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by Cristy Balcells
Once in a while, you get a great opportunity.

Today, we are really excited to show off our new logo and take you on a tour of MitoAction's history.

2005 MitoAction Logo

Jun 30, 2009 Comments: 2
by Cristy Balcells

 

Listen to the audio recording of this meeting here

Jan 29, 2009 Comments: 6
by Cristy Balcells

September 21st, 2008Cambridge, Massachusetts

615 people came together for one cause, and the result was incredible!

Read the 2008 Mitochondrial Disease Awareness Week Press Release

Five years ago, before MitoAction even existed as an organization, a family who is dealing with the diagnosis of mitochondrial disease may have been alone in their efforts to understand and find support and advocacy for the disorder.

Sep 26, 2008 Comments: 0
by Cristy Balcells

Congratulations Rocco on making it to the World Series! We continue to offer our encouragement and support.

 

Original Post August 8, 2008

Tampa Rays MLB player Rocco Baldelli Living with Mitochondrial Disease

He's in the news. His symptoms are vague. He looks tired.

Aug 08, 2008 Comments: 2
by Cristy Balcells

Is there hope for a cure for Mitochondrial Disease? Perhaps the answer is closer than we thought.

2010 UPDATE: Penwest announces Iniation of Phase IIa Clinical Trial in patients with Frederich's Ataxia

Read more...

Jul 19, 2008 Comments: 1
by admin

This week, a finding from November of 2007 hit the news, after being sealed by Federal Courts to protect the plaintiff's identity. The US government has conceded one vaccine-autism case in the Court of Federal Claims. Of significant interest, the vaccine is thought to have triggered the onset of an underlying mitochondrial disease.

Mar 06, 2008 Comments: 0
by admin

Guest speaker Saad Dinno RPh talks about the "Mito Cocktail". Join us as Acton Pharmacy's mitochondrial disease specialist discusses the various vitamin and supplement ingredients that may be included in the Mito cocktail. He will help patients and parents to understand the basics about these supplements, who may use them and why, and possible side effects or interactions while taking them.

Feb 18, 2008 Comments: 0
by admin

Kirsten, a MitoAction member, reported that Barbara Morse Silva interviewed her kids Olivia and Harrison on WJAR Channel 10 Providence, New Bedford RI (NBC) about their Make A Wish Foundation of Rhode Island "wish granted" trip and their mitochondrial disease.

The story with pictures of Olivia meeting and fencing with Antonio Banderas is available here. Mr. Banderas is probably most famous for his movie role as Zorro.

Feb 13, 2008 Comments: 0
by admin

MitoAction welcomed Valerie Powers Smith, Attorney-at-law, as guest speaker for the February General Meeting, February 1, 2008.

Topic: What you should know about disability rights

Feb 01, 2008 Comments: 0
by admin

Today, January 28th, the MitoAction committee chairs met by conference call to discuss the exciting ideas and projects ahead for 2008. Attending were: Lisa Parker, PR and Awarness Committee; Jean Shepherd and Wendy Helmka, Adult Advocacy Coalition; Kathy Graff and Kim Costello, Web Comittee; Anne Reckling, Publication Committee; Kirsten Casale, School Advocacy Committee; Christy Balcells, Executive Director; and Kim Lorimier, President, Board of Directors.

The top three goals for each committee were discussed. The following were discussed:

Jan 28, 2008 Comments: 0

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