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by GingerD

At summer camp, Stephen Nielsen is just one of the guys … telling jokes, talking with friends, fishing, boating, and doing archery.

“Most kids just want to be seen as normal and a part of the crowd. But you don’t always get that when you have something different,” said Diane, Stephen’s mom.

Stephen’s mitochondrial disease makes him different from most – except at camp.

Aug 07, 2014 Comments: 0
by GingerD
Jubinvilles celebrate 10 years of MitoAction walks

Lori Jubinville of Chicopee, MA, was diagnosed with mitochondrial disease in June 2005. In September 2005, Lori and husband Mark attended the first MitoAction Energy Walk. This year, along with MitoAction, the couple will mark 10 years of walking to raise awareness about this devastating disease.

Aug 06, 2014 Comments: 0
by GingerD

One little girl is using the colors of the rainbow to raise awareness about mitochondrial disease, the disorder that affects her. Alyssa Curley, the heart and soul of Team Lissy Loo of the MitoAction Energy Walk & 5K, decided to make and sell rainbow loom bracelets to benefit MitoAction.

Aug 06, 2014 Comments: 0
by GingerD

The Mito Warrior of Fultonville, NY, will be in Boston for his very first MitoAction Energy Walk & 5K this year and hopes to meet other kids just like him.

He couldn’t attend last year’s walk because his friends and family were holding a benefit for him on the same day. Since his family and friends helped him, Ethan Allen, 9, wants to give back and help others. He is raising money for kids just like him who have mitochondrial disease by collecting bottles and cans. He will give all the proceeds to MitoAction on behalf of his team, Mito Warrior’s Platoon, to help Mito families.

Aug 06, 2014 Comments: 0
by GingerD

For a pdf version of this story, please click here.

      Paul Harty and Eric Harty are not only first cousins; they are friends. Eric looks up to Paul, who is older. Paul admires Eric's artistic ability. They are both musicians. They support each other. They are as close as brothers. 

Dec 15, 2011 Comments: 0
by GingerD

 I have lost so much connection with the world and other people.  The deepest loss is with my family.  Sometimes my perception of their indifference to me becomes intense.  In a nutshell my family values most highly success, prestige, and status.  Success to them means being number one, a winner.  They work hard to stay on top.  They all base their value on professional competence and aim at being the best at what they do, mainly for prestige for being at the top of their profession. 

Nov 01, 2011 Comments: 8
by Cristy Balcells
ABC's Extreme Home Makeover & the Boston Bruins Foundation work with MitoAction for the makeover of the Tufts Medical Center Metabolism Clinic

July 2009, Boston MA

Jul 06, 2009 Comments: 0
by Anonymous (not verified)

Sandra Russell is a mother of two boys, ages 22 and 18. It's no wonder she's tired after raising two boys, with her husband Gordon, and co-owning and running a chain of retail stores. But her fatigue was more than the norm, says Gordon. "The first noticeable symptom was her hearing loss, and she had trouble keeping up with the busy pace of our life. I became frustrated with this as I felt like I was always having to remind her of the tasks she was supposed to be doing."

May 27, 2008 Comments: 1
by Anonymous (not verified)

Six year old Janis enjoys life in Maine with her adoptive parents Tom and Karen Kohlmeyer.. She was born with the inability to tolerate food and ended up with a fundoplication and a G tube at the weight of just over 9 pounds. She was abandoned at the hospital but soon after embraced by a loving family.

May 27, 2008 Comments: 6
by admin

Joey's smile lights up the world and the hearts of those who know him. He is a beautiful three year old boy with thick dark hair, large brown eyes, and a contagious smile.

Within hours of his birth, Joey began to have seizures which are now only partially controlled by medication. Joey was diagnosed with Mitochondrial Encephalomyopathy when he was seven months old. Mito robbed Joey of the ability to walk, sit, stand, speak and swallow but it hasn't robbed Joey of his joy for life.

Mar 13, 2008 Comments: 0

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