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Treatment

by GingerD

This is a joint message between MitoAction, UMDF, and the Foundation for Mitochondrial Medicine for the benefit of the mitochondrial disease community.

Patients, parents, and families -- please join us Tuesday, Dec. 6, 2016 at Noon EST (9 a.m. PST) by teleconference for a discussion of data from Stealth BioTherapeutics' Mitochondrial Myopathy clinical trial.

Nov 10, 2016 Comments: 0
by GingerD
Join us Friday, April 1, 2016 at Noon (EST)/9 a.m. (PST) as Dr. Amy Goldstein provides an update on the Mitochondrial Medicine Society.Areas of discussion include: Transplantation in Mito patientsStroke protocol for MELASStandards of care for Mito patientsCenters of Excellence and the need for community involvement/input

 

Mar 28, 2016 Comments: 0
by Cristy Balcells

This summary made possible by the generous support of Choate, Hall & Stewart

 

Nov 23, 2015 Comments: 0
by Cristy Balcells
What is Mitochondrial Myopathy? Learn more with Dr. Bruce Cohen on November 20th

 

Nov 10, 2015 Comments: 0
by Cristy Balcells
What is "the Mito Cocktail"?Referring to the combination of vitamins and supplements used as therapies in the treatment and management of mitochondrial disease and mitochondrial dysfunction, the "Mito Cocktail" is unique to every patient.
Sep 02, 2015 Comments: 0
by Cristy Balcells

Join us on Friday, March 6, 2015 with Dr. Sumit Parikh, Director of the Cleveland Clinic Neurogenetics, Metabolic and Mitochondrial Disease program, and past president of the Mitochondrial Medicine Society. Learn more about the 2014-2015 publications based on collaborations and consensus surveys completed by the Mitochondrial Medicine Society. The landmark series of publications is the first to address existing standards of care and most common approaches to diagnosis, use of supplements and symptom management by leaders in mitochondrial medicine around the US.

Feb 20, 2015 Comments: 0
by Cristy Balcells

Preventing mitochondrial disease in future generations: New techniques may stop the transmission of faulty DNA from mother to child.

-       Cristy Balcells RN MSN

Feb 16, 2015 Comments: 0
by Cristy Balcells
What is the mitochondrial disorder PDCD?PDCD is an abbreviation for pyruvate dehydrogenase complex deficiency, a genetic mitochondrial disorder in children which is frequently associated with lactic acidosis and neurological/neuromuscular symptoms. Join us Friday November 7th, 2014 with Dr. Peter Stacpoole from the University of Florida to learn about testing, diagnosis and treatment of PDCD.

(From Dr. Stacpoole's Benefunder Research page)

Oct 20, 2014 Comments: 0
by Cristy Balcells
Edison Pharma’s partnership offers hope for Mito community

 

Feb 03, 2014 Comments: 0
by Cristy Balcells
Stay informed - join the Bendavia communication list to be contacted first about future clinical trials!Want to learn more? Watch the video and see the FAQs at www.mitoaction.org/bendavia
Sep 30, 2013 Comments: 1

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