MitoAction Blog

Advocating Responsibly and Communicating Effectively

Cristy Balcells — Tue, 31 Jan 2012 13:08:53 -0800

During a time when families with children with mitochondrial disease may face accusations of medical child abuse or munchausen's by proxy, it is incredibly important to advocate responsibly and communicate effectively. Join us this month with guest speaker Mannie Taimuty-Loomis, BS OD, MAHED and Executive Director of the Jonah & The Whale Foundation, Inc. to learn more and discuss:

2012 Mito Town Meeting

Cristy Balcells — Thu, 05 Jan 2012 07:29:29 -0800

Read below for a recap of the "2012 Mito Town Meeting"

Everyone - parents, patients, family members and interested volunteers - is encouraged to call in and participate as we discuss important topics for the year.
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Eric Harty works his magic with metal

GingerD — Thu, 15 Dec 2011 08:35:43 -0800

For a pdf version of this story, please click here.

Paul Harty and Eric Harty are not only first cousins; they are friends. Eric looks up to Paul, who is older. Paul admires Eric’s artistic ability. They are both musicians. They support each other. They are as close as brothers.

Anesthesia: Risks, Precautions and Recommendations for Mitochondrial Disease Patients

Cristy Balcells — Mon, 28 Nov 2011 09:13:19 -0800

Will you still love me if I am nothing? -- Syd's story

GingerD — Tue, 01 Nov 2011 15:15:01 -0700

I have lost so much connection with the world and other people. The deepest loss is with my family. Sometimes my perception of their indifference to me becomes intense. In a nutshell my family values most highly success, prestige, and status. Success to them means being number one, a winner. They work hard to stay on top. They all base their value on professional competence and aim at being the best at what they do, mainly for prestige for being at the top of their profession.

How Do I Know if I Have Mito?

Cristy Balcells — Tue, 25 Oct 2011 09:44:27 -0700

Do I have Mito?
Does my child have Mito?
How do I know?
How can I be tested?
What should I do?!

Current Topics in IV Therapy for Hydration and Nutrition

Cristy Balcells — Tue, 04 Oct 2011 07:57:18 -0700

Using IV Infusions for Fluids and Nutrition

DOWNLOAD THE SLIDES TO ACCOMPANY THIS PRESENTATION HERE

LISTEN TO THE RECORDING HERE

Immunodeficiency Disorders and Mitochondrial Disease

Cristy Balcells — Mon, 29 Aug 2011 12:50:30 -0700

Do people with mitochondrial disease have issues with immunity and allergies?
What are immunodeficiency disorders, and why is this important for mitochondrial disease patients?
Are treatment approaches for allergies and immunodeficiency different for Mito patients?

Seizure disorders and epilepsy

Cristy Balcells — Mon, 01 Aug 2011 10:55:57 -0700

Some children and adults with mitochondrial disease also have seizure disorders or epilepsy.

Join us this month with Dr. Mary Kay Koenig from Children's Memorial Hermann Hospital at the University of Texas Medical School at Houston to learn more, including:

Mito-Autism: Information for parents and clinicians

Cristy Balcells — Fri, 24 Jun 2011 08:07:29 -0700

Many parents and clinicians have heard about the connection between autism (including ASD and PDD) and mitochondrial dysfunction. Join us with Dr. Fran Kendall of Atlanta's Virtual Medical Practice to learn more and discuss:

What is classified as mitochondrial dysfunction and mitochondrial disease?
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