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Board of Directors

Meet the MitoAction Board of Directors: People committed to improving the everyday lives of those affected by mitochondrial disease

Executive Committee and Board of Directors

Philip Borden, President

Philip Borden is  Managing Partner for Galen Partners. Prior to Galen, Philip was with Riverside Partners, a private equity firm based in Boston, where he was responsible for the firm's investments in healthcare companies. Philip attended Duke University and earned an MBA from Harvard Business School, where he was a Baker Scholar.

Philip has lived in the Greater Boston area for more than a decade and currently resides in Cambridge with his wife, Catherine. Catherine suffers from mitochondrial disease, and Philip became involved with MitoAction following her diagnosis. Catherine and Philip have a vizsla named Rummy, who brings them lots of joy (but sometimes chews their furniture and shoes).

Gordon Russell, Vice President

Gordon Russell is a native Bostonian. He grew up in Weston, MA and attended Hobart College and the Boston University School of Fine Arts. He lost his wife, Sandra, to MELAS in 2008. Gordon is the owner of In The Pink Stores Inc., which he and Sandra founded in 1996. In The Pink operates six retail clothing stores in Massachusetts. Gordon has two children, Buck and Jonathan, and resides in Wellesley, MA. During Sandra's struggle with MELAS, Gordon and his boys experienced firsthand the support and guidance provided by MitoAction and came to fully understand how critical a role the organization plays. Gordon is serving on the MitoAction board to support MitoAction's evolution and to ensure MitoAction will always be positioned to provide vital support to individuals and families affected by mitochondrial disease.

Tom Keery, Secretary

Thomas R. Keery, II is the General Partner of the Keery Family Limited Partnership, a real estate partnership with commercial and residential properties in Massachusetts. Prior to entering the real estate business, Tom was president of Frost Motors Inc., a Newton, MA dealership holding company. In operation since 1934, Tom joined the family business upon his graduation from Ithaca College in 1975 with a degree in Communications. Since 1985, Tom had been the Dealer Principal, and had successfully grown the business, acquiring and selling several dealerships. In 2002, he was named the Massachusetts recipient of Time Magazine's Quality Dealer Award, which is given annually to automobile dealers in recognition of their leadership in community and Industry affairs.

Tom is a member and past president of the Rotary Club of Newton, a member ofSt. Peter's Church in Weston, a past director and officer of the YMCA, and a member and past director of the Newton Needham Chamber of Commerce. He is also a member of the Newton Elks. Tom's sister Sandra passed away in 2008 due to MELAS.

Born in Newton in 1953, Tom resides in Weston with his wife, Laura, where they raised their four children. He enjoys golf and cycling.

Paul Harty

Paul Harty became president of Seven Step Recruiting in 2008. Seven Step is a leading provider of large-scale hiring solutions, using a unique team-based model of RPO services delivery. Paul is responsible for the company's strategic direction, and oversees the delivery of all client solutions. Prior to joining Seven Step, Paul spent 15 years building and managing a successful technology recruiting and placement businesses. He lives in the Boston area with his wife and children. His son, Matthew, died of Pyruvate Dehydrogenase Deficiency at the age of 8. While searching for answers for his son's disabilities and managing through a long diagnosis process, Paul discovered MitoAction as a strong support system and a way to gain knowledge about Mito. Paul became an active member to guarantee that other caregivers or patients who are faced with Mito have access to continued support and knowledge that is so necessary when dealing with rare disease.

Jessica Fein

Jessie is the vice president of corporate marketing and creative services for Bright Horizons, the world’s leading provider of employer-sponsored child care and work/life solutions. She is a former opinion columnist for the Sunday Boston Globe and is the author of "Moving On: How to Make the Transition from College to the Real World." Prior to working at Bright Horizons, Jessie ran her own writing business, Fein Print. Jessie is the mom of three incredible children, Jonah, Dalia, and Theo. Dalia has the mitochondrial disease MERRF Syndrome.

Click here to read more about Jessie!

Marie A. Grant

Marie grew up in Weston, MA and began her career in finance and accounting at the Seaport Hotel in Boston. She recently made a career move to the Mobile Advertising industry and is currently working as the Accounting Manager at Adelphic Mobile, Inc. She was inspired to volunteer for MitoAction when a family friend, Sandra Russell, needed support during her battle with MELAS. Since her first walk with Sandra’s Stars, Marie has been an active volunteer at Boston area events, including managing the betting tables during the Sandra K. Russell Derby Day Benefit for Mito. As a young professional, it is her hope to be able to engage others and teach them about the importance of MitoAction to the mitochondrial disease community.

Saad Dinno, RPh

Saad Dinno, RPh, FIACP, FACA, has given lectures on mitochondrial disease across the country as well as in Australia. His staff works with patients and their providers on insurance coverage issues, compliance, taste, dosage form, counseling on the medications being dispensed, and other relevant Mito information and general questions.

He is a member of the Massachusetts Independent Pharmacy Association, Massachusetts Pharmacist Association, National Community Pharmacist Association, and International Academy of Compounding Pharmacists. He is the past president of the Massachusetts Independent Pharmacy Association and previously served on the Professional Compounding Centers of America (PCCA) Advisory Board.

Saad has received numerous awards, including being named the Margaret Bauman Outstanding Medical Professional for his work serving the autism community.

He was also named Massachusetts Innovative Pharmacist of the Year, PCCA Pharmacist of the Month, and received a Fellowship distinction from the International Academy of Compounding Pharmacists. Additionally, Saad serves on Emerson Hospital’s Care Transition Collaborative Committee, the Eliot Community Human Rights Committee, Cardinal Distribution East Advisory Board and the MitoAction Marcel Way Fund Committee. He received his Bachelor of Science degree in pharmacy from the Massachusetts College of Pharmacy and Health Sciences.

Andrew Nierenberg, MD

Dr. Nierenberg is Professor of Psychiatry, Harvard Medical School, Co-Director of the Bipolar Clinic and Research Program, and Associate Director of the Depression Clinical and Research Program, Massachusetts General Hospital (MGH). He attended the Albert Einstein College of Medicine of Yeshiva University followed by a residency in psychiatry at New York University/Bellevue Hospital and then became a Robert Wood Johnson Clinical Scholar at Yale University. In 1992, he joined the Psychiatry Department at MGH. He has published over 250 original articles and over 60 reviews, editorials, and chapters, and has been listed among the Best Doctors in North America for the treatment of mood and anxiety disorders continuously since 1994. He received the NDMDA Gerald L. Klerman Young Investigator Award and was elected as a member of the American College of Neuropsychopharmacology (ACNP) and as a Distinguished Fellow of the American Psychiatric Association. His primary interests are treatment resistant depression, bipolar depression, and the longitudinal course of mood disorders.

Medical Advisory Committee

Dr. Darius Adams, MD

Dr. Darius Adams completed his internship and residency in Genetics at the Mount Sinai Medical Center in New York City, where he received comprehensive training in genetics and dysmorphology. He remained at Mount Sinai for an additional year to complete a fellowship in Metabolic/Biochemical Genetics. Dr. Adams was certified as a Clinical Geneticist by the American Board of Medical Genetics in September 2002 and 2012 and as a Clinical Biochemical Geneticist in September 2005. Dr. Adams joined the Pediatrics Department at Albany Medical Center in July 2003 as an attending physician and an Assistant Professor. He is now Medical Director of the Goryeb Children’s Hospital Genetics and Metabolism Division in addition to the Personalized Genomic Medicine Program at Atlantic Health System in Morristown, NJ. He also directs the Lysosomal Storage Disease program at Atlantic Health System and follows patients with Gaucher, Fabry, Pompe and Morquio A.

Dr. Richard Boles, MD

Dr. Richard G. Boles completed medical school at UCLA, a pediatric residency at Harbor-UCLA, and a genetics fellowship at Yale. For over two decades, Dr. Boles' clinical and research focus has been on changes in genes involved in energy metabolism, and more recently ion channels, and their effects on the development of common functional disorders. Examples include autism, pain syndromes, chronic fatigue, cyclic vomiting, intestinal dysmotility/failure, and depression. Dr. Boles practices the "bedside to bench to bedside" model of a physician-scientist, combining an active clinical practice with basic research into the underlying genetic predispositions leading to the same conditions. He has over 80 published papers, mostly in mitochondrial medicine. For 20 years, Dr. Boles was a faculty member at the Keck School of Medicine at USC and a practicing medical geneticist and metabolic specialist at Children's Hospital Los Angeles. He is currently a Medical Director of Lineagen, and previously he held that position at Courtagen, which are/were genetic testing companies. Dr. Boles became involved in genetic testing in order to facilitate the translation of the vast amounts of acquired genetic knowledge into applications that improve routine medical care. Dr. Boles has an active private practice in Pasadena and Aliso Viejo, CA. About half of the patients he currently sees as a physician have one of more functional conditions, especially cyclic vomiting syndrome, other forms of complex migraine, and/or chronic fatigue syndrome. Most of the other half have an autistic spectrum disorder or related condition. His clinical practice is devoted to using information, including genetic testing, to guide options for therapy. His care philosophy, practice, and types of patients he accepts are discussed at A telemedicine practice will open likely about mid-2018. Dr. Boles also does legal consulting, especially for those with multiple functional conditions that others are considering fictitious disorder/Munchausen-by-proxy/medical child abuse. Finally, he is the primary designer of SpectrumNeeds, a nutritional product with 33 active ingredients designed for individuals with autism or other neurodevelopmental disorders, with an emphasis on assisting mitochondrial function (

Cheryl Clow, RN

Cheryl Clow is a registered nurse and has been Clinical Care Coordinator in the Department of Pediatrics at Albany Medical Center for 26 years. She worked in the Section of Pediatric Endocrinology for 13 years prior to working with the Section of Genetics and Inborn Errors of Metabolism, her current position since 2003. She has worked facilitating care of patients with mitochondrial disorders during that time, both pediatric and adult. She was voted Employee of the Year at Albany Medical Center in 2014, and the Albany Times Union’s “Salute to Nurses” Nurse of the Year Finalist two years in a row, 2015 and 2016. She is currently a member of the Medical Advisory Council for Make-A-Wish Northeast NY.

Dr. David Holtzman, MD, PhD

Dr. David Holtzman works in Pediatric Neurology at Massachusetts General Hospital for Chidren. He is board-certified in Pediatrics and Neurology. He is an associate professor in neurology at HMS. He graduated from the University of Chicago Medical School and served his residencies in Pediatrics and Child Neurology at Bronx Municipal Hospital Center and at Albert Einstein College of Medicine in New York. He was Head of Pediatric Neurology at Stanford University and Tulane University.

Dr. Mark Korson, MD

Dr. Mark Korson graduated from the University of Toronto School of Medicine and completed his pediatric residency nearby at The Hospital for Sick Children. After his fellowship in genetics and metabolism at Boston’s Children's Hospital, he became director of the Metabolism Clinic at Children's until 2000. In 2000, Dr. Korson became director of the Metabolism Service at Tufts Medical Center's Floating Hospital for Children, as well as Associate Professor of Pediatrics at Tufts University School of Medicine until 2014.

Dr. Korson promotes an educational approach to address the growing crisis in metabolic health care due to the shortage of available clinicians to treat this patient community. In 2007, Dr. Korson co-founded the North American Metabolic Academy, an annual one-week intensive course about metabolic disease for genetic and metabolic trainees; to date, more than half of all American genetic trainees have enrolled in this course. NAMA is sponsored by the Society for Inherited Metabolic Disorders.

Between 2007 and 2011, Dr. Korson directed the Metabolic Outreach Service, based at Tufts Medical Center, for which he traveled on a regular basis to five teaching hospitals in the northeastern US without an on-site metabolic service. In 2015, Dr. Korson co-founded the Genetic Metabolic Center for Education (GMCE), a comprehensive, multi-modal initiative for improving the level of care for children and adults with metabolic disease. This past October, Dr. Korson joined VMP Genetics in Atlanta to promote telehealth metabolic consulting, assisting physicians in the care of their metabolic patients. He continues to develop innovative resources to help educate specialists and their trainees so they can participate more in the diagnosis and management of metabolic disease.

Dr. Amy Goldstein, MD

Dr. Amy Goldstein, a member of the Board of Trustees of UMDF, is an attending physician with the Division of Human Genetics at Children’s Hospital of Philadelphia. She was on faculty at Children’s Hospital of Pittsburgh of UPMC in the Division of Pediatric Neurology. She is board certified in pediatrics, neurology, and psychiatry with Special Qualifications in Child Neurology. She is currently an Assistant Professor at the University of Pittsburgh School of Medicine. She began a multidisciplinary mitochondrial disease clinic in 2007 and is now the Director of Neurogenetics & Metabolism and the site Principle Investigator for NAMDC (the North American Mitochondrial Disease Consortium). She is also president of the Mitochondrial Medicine Society. Her clinical research interests include improving fatigue and exercise intolerance as well as developing common patient-centered outcome measures for clinical trials.

Dr. Amel Karaa, MD

Dr. Amel Karaa obtained an international Baccalaureate from the Franzoesisches Gymnasium with a major in Biology and Chemistry in Berlin, Germany, before completing her doctoral training at la Faculte de Medicine et de Pharmacie de Tunis in Tunisia. She later spent three years in the laboratory of Dr. Mark Clemens at the University of North Carolina at Charlotte, where she worked on liver microcirculation regulation under oxidative stress from which she has several publications. She subsequently completed a residency in internal medicine at Mount Auburn Hospital, Harvard, and a fellowship in clinical genetics through the Harvard Medical School combined program. During her career, Dr. Karaa has always been intrigued by rare multisystemic disorders and has tried to acquire a multidisciplinary training in basic research, clinical research, and medical service that uniquely shaped her to be a competent physician scientist. She is double board certified in internal medicine and clinical genetics, and leads the lysosomal storage disorder and adult mitochondrial clinics at the Massachusetts General Hospital in Boston. She received the 2013 United Mitochondrial Disease Foundation (UMDF) Fellowship and is conducting her research on hypogonadotropic hypogonadism in mitochondrial disease. Dr. Karaa is committed to being an advocate for her mitochondrial patients and to educate adult providers in recognizing and treating mitochondrial patients who are often discounted as having somatization disorders and factitious symptoms.

Dr. Alex Flores, MD

Dr. Alex Flores is Director and Chair of Ambulatory Community Services and Associate Physician Motility and Gastrointestinal Disorders at Boston Children's Hospital. He is alsoClinical Professor of Pediatrics, Harvard Medical School. Prior to Children's,Dr. Flores was Chief of Pediatric Gastroenterology and Nutrition at Floating Hospital for Children at Tufts Medical Center, Director of the Pediatric Neurodigestive Center at the Floating Hospital for Children, Tufts Medical Center, and Clinical Professor of Pediatrics at Tufts University School of Medicine. He is a graduate of the Universidad de San Carlos de Guatemala School of Medical Sciences, and received graduate training at Baylor College of Medicine, Children's Hospital Boston/Harvard Medical School, Duke University Medical Center, Hospital Militar, Jacaltenango Hospital, Roosevelt Hospital in Guatemala, and the World Health Organization-UNICEF. Dr. Flores is board-certified in Pediatric Gastroenterology and Pediatrics and works closely with Dr. Mark Korson to support metabolic and mitochondrial patients with GI dysfunction. In addition to developing innovative laparoscopic technique for enteral support, Dr. Flores' specialities include GI motility disorders and general pediatric gastroenterology.

Dr. Patricia O'Malley, MD

Dr. Patricia O'Malley has trained in pediatrics, pediatric critical care, emergency medicine and palliative care at Massachusetts General Hospital and Children's Hospital Boston. She has served as the director of the Pediatric ED at MGH for 25 years and is also the director of the Pediatric Palliative Care Team. Dr. O'Malley has worked as part of the coordinated care team for several mitochondrial disease patients.

Dr. Frances Kendall, MD

Dr. Fran Kendall is a Harvard-trained board-certified Clinical Biochemical Geneticist who founded the very first clinical mitochondrial disease program in the United States in the early 1990s. Over her 25-plus-year career specializing in Metabolic, Mitochondrial, and Inherited Disorders, she: founded one of the first commercial laboratories focused on rare metabolic and mitochondrial disorders; was the head of genetics for a large hospital system in Atlanta; co-founded a mitochondrial foundation that is still very active; pioneered telemedicine and private practice in rare genetics by founding VMP Genetics; authored chapters on mitochondrial medicine for medical texts and numerous research articles; lectures at medical schools and nursing schools on these disorders; is a frequent guest speaker at medical conferences on mitochondrial disease and autism; often acts as an expert witness in Federal court cases; and has appeared on national news outlets to offer expert opinion. 

She currently sees children and adults patients from around the world in either her VMP Genetics clinic in Atlanta, GA or by telemedicine and has over 20,000 fans of her medical Facebook site.

Michael Kendall

Michael Kendall has an extensive business background leading companies engaged in diverse marketplaces such as advertising, printing, graphic arts, executive recruiting, oil, retail, in-home services, technology, and laboratory services. He co-founded a mitochondrial foundation that is still very much active, managed a rare disease laboratory, and co-founded VMP Genetics. He developed the model for delivering telemedicine in rare genetics and was an early adopter of leveraging social media in medicine resulting in 20,000-plus fans of the VMP Facebook site.

Ann Lanoue, RN

Ann Lanoue works tirelessly as the school nurse at Algonquin Middle School in Averill Park, NY. The school has more than 700 students and 100 staff members. Ann's knowledge is matched with a tremendous desire to continually grow, learn, and support everyone at the school. Ann joined the Averill Park Central School District after a long career in nursing at a local hospital. Rare is the day that Ann takes a lunch break. She arrives to school early each day, works tirelessly without ever saying “no” to anyone, and regularly stays after school for several hours each day. Ann has led efforts to secure funding for the high school athletics program and modified athletics at the middle school, which were cut due to budget constraints. Each year, Ann coordinates giving hundreds of Christmas gifts and Thanksgiving meals to needy families in the community with the support of Kiwanis. Ann also makes sure that no student goes hungry, regularly connecting students and parents with resources to support them in difficult times. Ann has helped so many families that are in either crisis or struggling with what to do next as a result of major, catastrophic illnesses.

Ann was selected as one of the top 10 nurses in the Capital Region and was featured in "Salute to Nurses."

Andrew Nierenberg, MD

Dr. Nierenberg is Professor of Psychiatry, Harvard Medical School, Co-Director of the Bipolar Clinic and Research Program, and Associate Director of the Depression Clinical and Research Program, Massachusetts General Hospital (MGH). He attended the Albert Einstein College of Medicine of Yeshiva University followed by a residency in psychiatry at New York University/Bellevue Hospital and then became a Robert Wood Johnson Clinical Scholar at Yale University. In 1992, he joined the Psychiatry Department at MGH. He has published over 250 original articles and over 60 reviews, editorials, and chapters, and has been listed among the Best Doctors in North America for the treatment of mood and anxiety disorders continuously since 1994. He received the NDMDA Gerald L. Klerman Young Investigator Award and was elected as a member of the American College of Neuropsychopharmacology (ACNP) and as a Distinguished Fellow of the American Psychiatric Association. His primary interests are treatment resistant depression, bipolar depression, and the longitudinal course of mood disorders.

Ted Toufas, BS, PharmD, RPh

Ted Toufas BS, PharmD, RPh, Clinical Pharmacist and Pharmacist-in-Charge Compounding Lab at Acton Pharmacy, and Adjunct Assistant Professor, graduated in 2004 from WPI with a degree in Biochemistry, and in 2011 earned his Pharmacy Doctorate from Mass College of Pharmacy in Boston. He has worked in the compounding lab at Acton Pharmacy since 2005 as a technician, intern, and pharmacist. Over the years, he has built close relationships with his patients and providers, working closely with them to develop dosage forms that meet individualized needs. He has worked with mitochondrial providers and patients, trying to match the best formulation for taste and dosage form for ease of use. In addition, he has developed formulations, training for staff, and protocols for the lab. While he has been at Acton, the lab has received accreditation by the Pharmacy Compounding Accreditation Board (a voluntary national inspection), UCAP (another voluntary national inspection, geared for insurances), and high marks in a National Association of Boards of Pharmacy inspection (required for UCAP accreditation). He continues to strive for improvement through training and education, both in pharmacy compounding and regulations.

MaryBeth Hollinger RN MSN

MaryBeth Hollinger RN, MSN is the Director of Education, Support, and Advocacy for MitoAction. She is the coordinator of the Mito 411 line, a toll-free hotline for the Mito community, moderates the weekly teleconferenced MitoAction support group, coordinates MitoAction’s Monthly Mito Expert Series, and is involved with MitoAction’s memories group. MaryBeth has a strong desire to assist families facing medical child abuse charges, developing a plan of action for these families. These families are strong, yet can be so lost and vulnerable. MaryBeth earned her BSN at Boston College and earned a dual MSN in nursing education and pediatric clinical nurse specialist. MaryBeth worked at Albany Medical Center’s NICU as the research coordinator, earning both institution and NYS Regional Nurse of Distinction Honors. Volunteerism is a cornerstone to MaryBeth’s life. She has been active with Therapy Dogs International, taking her dog to schools, libraries, and Albany Medical Center’s pediatric units. MaryBeth lives in upstate New York with her supportive husband and has four children. As MaryBeth’s life has also been touched by mitochondrial disease, she has devoted her time and energy to helping others navigate this complex, misunderstood disease through education and advocacy efforts.