Camps for Mito Kids
MitoAction partners with Camp Korey in Washington for Mito Weeks!
Camp Korey's mission is to honor the courage, strength, and determination of children and their families who battle life-threaten ing and serious illnesses; and to provide them with a safe, friendly, medically sound environment in which to simply have fun and be kids.
To apply, go to www.campkorey.org/apply.
For more information, check out www.campkorey.org.
Double H Ranch camps accepting applications now!
The Double H Ranch is currently accepting applications for children (ages 6-16) with serious & life-threatening illnesses to attend camp this summer! Join Double H in celebrating its 20th summer of providing these medically safe camping experiences FREE of charge. Visit here to learn more and to print your application today! Or call 518-696-5676, ext. 263 for more information.
The Double H Ranch, co-founded by Charles R. Wood and Paul Newman, provides specialized programs and year-round support for children and families dealing with chronic and life-threatening illnesses, including mitochondrial disease. The purpose is to enrich their lives and provide camp experiences that are memorable, exciting, fun, empowering, physically safe and medically sound. Please check out these links for more information:
Camp for All's Mito Camp Nov. 2-4, 2012
Mito Camp will be holding its 2012 camp on Nov. 2-4, 2012 in Texas. Mito Camp is for children with Mito and their families as well as adults with Mito and their caretakers. This is an opportunity for people with mitochondrial disease to enjoy the camp experience. It is also a chance for those who have never talked to other Mito patients to share stories and learn how others are coping with this devastating disease. The camp will be held at Camp For All in Burton Texas, a barrier-free facility specifically built and operated to cater to those with disabilities. There are no fees for campers, caretakers, children, and family members to attend the Mito Camp. Applications are being accepted now!
Xtreme Volunteerism - Would You Kumbaya for Your Cause?
Dr. Katherine Sims, Director of Developmental Neurogenetics at Massachusetts General Hospital, Gordon Russell, Boston entrepreneur, and his son Jonathan left the comfortable confines of their Boston area homes to be volunteer counselors for a week at Camp Korey in Seattle, Washington.
Medford, MA (PRWEB) July 30, 2010
For Dr. Sims, Mr. Russell and his son, the week provides a chance to share the opportunity of a lifetime with 50 children afflicted with mitochondrial disease a disease that for Dr. Sims and the Russells has been a major force in shaping their lives.
As one of the founding members of MitoAction, a 501(c)3 charity whose mission is to improve the quality of life for individuals and families affected by mitochondrial disease, Dr. Sims is heavily invested in caring for her patients with mitochondrial disease, and is also involved in advanced research in the field that will improve testing for and identification of mitochondrial disease. Mitochondrial disease is often misdiagnosed and is under-recognized due to the difficulty and complexity of the tests that can definitively identify the disorder. Mr. Russell, who now serves on MitoAction's Board of Directors, knows first hand of the struggles associated with mitochondrial disease. His wife Sandra, having been diagnosed in 2005, lost her battle with mitochondrial disease in August of 2008. He, and his son Jonathan will be counselors at Camp Korey's 'Mito Week' on the second anniversary of Sandra's death.
Camp Korey's Mito Week promises to be "xtreme". Kids of all ages and abilities who have this neuromuscular degenerative disease in common, will share a camp experience that all children dream of. Fishing on the lake, roasting marshmallows, spa night, horseback riding all the camp activities that 'normal' kids talk about. But this week, because all campers have mito all mito campers are 'normal' in spite of their life threatening medical issues. Many children with mitochondrial disease are unable to walk or talk, and some require a feeding tube to stay alive. Camp Korey, as a provisional member of Paul Newman's Association of Hole in the Wall Camps, offers programs that are specifically designed for children with chronic or life-threatening illnesses, creating positive recreational experiences where children with serious illnesses are understood and accepted. In 2008, thanks to the leadership of Sandra and Gordon's close friend Suzan Chavez, Camp Korey recognized the lack of opportunities for children with mitochondrial disease and created and launched the first "Mito week" in the summer of 2009. Mitochondrial disease is more common than cystic fibrosis in children. There is no cure for mitochondrial disease and very few resources exist to support patients and their families.
MitoAction was founded by a team of Boston doctors, nurses and patients in 2005 to meet the direct needs of patients and their families struggling to deal with the daily devastation of mitochondrial disease. Recent research suggests that 500,000 people in the US have mitochondrial disease, although only 50,000 have been accurately diagnosed.
This wonderful week of camp dedicated exclusively to benefit children with "mito" takes place August 2-7 at Camp Korey in Seattle, WA. For these 'mito' kids, the chance to go to Camp Korey is a once in a lifetime opportunity. For Dr. Sims and Mr. Russell it is the opportunity of a lifetime.
MitoAction is proud to sponsor campers from across the US, making it possible for kids with Mito from out-of-state to go to camp. To support this fund and give a child the opportunity to go to "Mito Week" at Camp Korey, please consider making a tax-deductible gift at www.MitoAction.org/donate and designate your gift for "Camp".
For more information, contact Cristy Balcells, Executive Director 888-648-6228
Camp Korey in Washington is offering an incredible opportunity to children ages 7-16 with mitochondrial disease to attend camp and participate in therapeutic camp activities that include; canoeing, swimming, arts and crafts, horse back riding, climbing wall, fishing, theatre, and much more!
MitoAction is proud to sponsor two campers for this week.