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Canada
MitoAction International - Canada 
No matter where you live, living with mitochondrial disease is challenging. Whether you are a parent of an affected child or an adult patient, you need support. You need information. You need guidance and a community while on this journey.
Unlike some conditions, mitochondrial disease is life-changing and has no period of remission. It is learning to be a great advocate for oneself or one's child that is often so difficult in the early years of diagnosis. On the other hand, when we do find support and feel like we are on solid ground, we feel so triumphant!
This page was created by volunteers who are adult patients, caregivers, or parents of children who have Mito. It is their sincere wish that this list of resources makes the journey easier for you. The information on these pages was accurate and complete to the best knowledge of all involved at the time of submission.
We welcome your comments, suggestions, or requests for support: Canada@MitoAction.org
Canadian Resources - search engines:
Listings Canada is an all-purpose search engine for non-profit orgs http://listingsca.com
Disability Resources listed by province for people living each province: see the listing of the province (eg. Yukon http://listingsca.com/Yukon/Health/#disability )
Federal Government of Canada:
Aboriginal Resources Canada http://www.gov.bc.ca/arr/services/guide.html
Canada Pension Plan (CPP) Disability Benefitshttp://www.servicecanada.gc.ca/eng/isp/cpp/disaben.shtml
http://www.servicecanada.gc.ca/eng/isp/cpp/applicant.shtml
Centre for persons with Disabilities online http://www.pwd-online.ca/pwdhome.jsp?lang=en
Child Disability Benefit (CDB) www.cra-arc.gc.ca/bnfts/dsblty-eng.html
- A tax free benefit for families who care for a child who qualifies for the disability amount. It is paid monthly to the Canada Child Tax Benefit
Customs Information http://www.cra-arc.gc.ca/menu-eng.html
- 9979.00.00 Goods specifically designed to assist persons with disabilities in alleviating the effects of those disabilities, and articles and materials for use in such goods. Free. NO DUTY
Disability Tax Credit Certificate (form T2201) www.cra.gc.ca/forms
- You are eligible for the disability amount only if a qualified practitioner certifies that there is a severe and prolonged impairment.
Excise tax information
- If you are medically certified as having permanent mobility impairment, and you cannot safely use public transportation, you can apply for a refund of part of the federal excise tax on the gasoline you buy. For more information and an application form, see Information Sheet XE8, Federal Excise Gasoline Tax Refund Program.
GST/ HST Information http://www.cra-arc.gc.ca/tx/ndvdls/sgmnts/dsblts/gsthst-tpstvh/menu-eng.html
- Some of the goods and services used by persons with disabilities that are exempt from, or zero-rated for the GST/HST.
Health Canada http://www.hc-sc.gc.ca/index-eng.php
Links to offices of the Ombudsman in the provinces http://www.gnb.ca/0073/provinces-e.asp
- The Ombudsman will investigate complaints against government departments. They are independent of government and have investigational powers and can take issues to parliament and the media.
Registered Disability Savings Plan (RDSP)
http://www.cra-arc.gc.ca/gncy/bdgt/2007/rdsp-eng.html
- tax-deferred savings plan designed to assist families in planning for the long-term financial security of their relatives with disabilities. The federal government matches contributions made through the Canada Disability Savings Grant. For people who have limited financial means, the Canada Disability Savings Bond is available without contributions.
Respite for Family Caregivers
http://www.hc-sc.gc.ca/hcs-sss/pubs/home-domicile/2003-respite-releve/nfl-tn-eng.php
Topics for Persons with a Disability http://www.cra-arc.gc.ca/disability/
- A webpage guideline of topics of interest to people with disabilities.
Forms and publications
- Individuals - Persons with disabilities
- Guide RC4064, Medical and Disability-Related Information
- Guide RC4460, Registered Disability Savings Plan (RDSP)
- Form T2201, Disability tax credit certificate
- Form T929, Disability supports deduction
- Information Sheet XE8, Federal Excise Gasoline Tax Refund Program
- Links to Applications for CPP Disability Benefits (scroll down page) http://www.hrsdc.gc.ca/cgi-bin/search/eforms/index.cgi?app=profile&form=isp1151&lang=e
Related topics
Government partners
Canadian Organizations
Access Guide Canada - directory by province of disability associations http://www.abilities.ca/agc/disability_organization/subject_index.php?pid=5&cid=&atype=disability_organization
Access to Justice Network Canada http://www.acjnet.org/naservices/legal.aspx
Active Living Alliance for People with Disabilities http://www.ala.ca/content/home.asp
Allergy/ Asthma Association of Canada http://aaia.ca/
Angel Flights (Ontario and British Columbia have their own versions) http://en.wikipedia.org/wiki/Angel_Flight
Association of Compounding Pharmacies of Canada http://www.acpcrx.org/
Canadian Association for the Deaf http://www.cad.ca/
Canadian Celiac Association: http://www.celiac.ca/
Council of Canadians with Disabilities http://www.ccdonline.ca/en/
Canadian Directory of Palliative Care http://www.oulton.com/chpca
Canadian Medic Alert Foundation http://www.medicalert.ca/en/index.asp
Canadian Muscular Dystrophy Assoc. www.muscle.ca
Canadian National Institute for the Blind http://www.cnib.ca/
Canadian Orthopedic Association http://www.coa-aco.org/
Canadian Organization for Rare Disorders www.raredisorders.ca
Canadian Society of Intestinal Research http://www.badgut.com/
Canadian Special Olympics http://www.specialolympics.ca/
Centre for Child Disability Research http://canchild.ca/en/
Charity Village http://www.charityvillage.com/cv/main.asp
Coalition for Active Living in Canada http://www.activeliving.ca/english/index.cfm?fa=resources.helpfullinks
College of Family Physicians of Canada http://www.cfpc.ca/global/splash/default.asp?s=1
Dietitians Canada http://www.dietitians.ca/
Easter Seals Canada www.easterseals.ca/english
Diabetes Information http://diabetic.ca/ and http://diabetic.org/
Disabled Parking in Canada http://disabled-travelers-services.suite101.com/article.cfm/disabled_parking_permits_in_canada
Financial Assistance Programmes (compilation of links) http://www.hollandbloorview.ca/resourcecentre/communityresources/documents/funding.doc
Heart and Stroke Foundation http://ww2.heartandstroke.ca/splash/
Home Care and Respite http://www.howtocare.com/home_care6.htm
Home Care Links http://www.cdnhomecare.ca/content.php?TAG=links
Independent Living Canada http://www.ilcanada.ca/article/home-125.asp
International Foundation for Functional Gastrointestinal Disorders http://www.aboutkidsgi.org/
Kidney Foundation Canada http://www.kidney.ca/
Lifeline Canada https://www.lifeline.ca/en/
March of Dimes Canada http://www.marchofdimes.ca/dimes/national_programs/
March of Dimes Mobility http://www.modmobility.ca/
Motion Specialties Canada http://www.motionspecialties.com/
Palliative Care Canada http://www.hc-sc.gc.ca/hcs-sss/palliat/index-eng.php
President's Choice Children's Charity http://www.presidentschoice.ca/LCLOnline/aboutUsCharity.jsp
Public Health Agency of Canada http://www.phac-aspc.gc.ca/chn-rcs/index-eng.php
Society of Obstetrics and Gynecologists of Canada http://www.sogc.org/index_e.asp
Variety Village -
- Alberta http://www.varietyclub61.ab.ca/
- British Columbia http://www.variety.bc.ca/
- Manitoba http://www.varietymanitoba.com/
- Ontario http://varietyontario.ca/
Vocational Rehabilitation Canada http://www.vrcan.ca/english/foundations.php
Provincial Governments:
Alberta:
* Provincial Disability Search http://listingsca.com/Alberta/Health/Disabilities/
Children and Youth Services http://www.child.alberta.ca/home/
Alberta Centre for Child and Community Research http://www.research4children.com/
Chronic Disease Self Management http://www.calgaryhealthregion.ca/programs/cdm/
Child Health Benefit http://web-ext.chr.ab.ca/bins/content_page.asp?cid=5073-5101-10990-11638-12412&pre=view
- For families with low income. This plan pays for health services such as eyeglasses, prescription drugs and dental care
Education http://education.alberta.ca/
Family Support for Children with Disabilities http://www.child.alberta.ca/home/591.cfm
- The FSCD program uses a family-centred approach to provide parents with funding to access a range of supports and services that strengthen their ability to promote their child's healthy growth and development. In addition, FSCD assists with some of the extraordinary costs of raising a child with a disability.
- Children who are significantly limited in their activities of daily living due to their disability may receive child focused services. Services are determine based on the impact of the child's disability on their activities of daily living, the needs identified by the parent/guardian, as well as assessment information from professionals who work with the child. Services may include:
- additional respite services, including short-term hourly respite, 24-hour in- or out-of-home respite, homemaking support and domestic child care;
- assistance with child care to support a family with extraordinary work related child care costs, including an aide in day care or additional space in a day home as well as day care where required to support the child's development;
- aide support to assist the child with personal care, community involvement or behavioural and developmental support.
- health-related services, including dental or orthodontic treatment, disability-related prescription drugs, ambulance service, prescription formula or special diet and medical supplies that are not covered under any other health plan;
- specialized services for children with severe disabilities; and
- out-of-home living arrangements, if necessary, to support a child when all other alternatives for in-home supports have been explored. (Note: the parent/guardian maintains all guardianship responsibilities)
Health and Wellness http://www.health.alberta.ca/
Pro Bono Law http://www.pbla.ca/
- free of charge legal services
Vocational Rehabilitation http://vracanada.com/alberta.php
British Columbia:
* Provincial Disability Search http://listingsca.com/British-Columbia/Health/Disabilities/
Aboriginal Infant Development Programme of B C http://www.aidp.bc.ca/
- Provides culturally appropriate services to aboriginal families of children, age 0 to 3, who are at-risk for or who may have a delay in development.
Access Pro Bono http://www.accessjustice.ca/public/clinics.asp?province=BC
- Free of charge legal services
Advocate for Service Quality http://www.eia.gov.bc.ca/advocate/
- Assists in situations involving adults with developmental disabilities and transitioning youth with special needs and their families who could benefit from the intervention of someone working independently of ministries and agencies.
At Home Programme http://www.mcf.gov.bc.ca/at_home/index.htm
- The At Home Program assists parents with some of the extraordinary costs of caring for a child with severe disabilities at home through a range of health supports and services. It provides assistance in two main areas:
Respite Benefits allow parents to choose appropriate care options for their child and family.
Medical Benefits provide a range of basic, essential medical items and services
Autism Society of BC http://www.autismbc.ca/
- A parent based and directed society providing support to individuals with autism spectrum disorder and their families in British Columbia and the Yukon.
B C Aboriginal Child Care Society http://www.acc-society.bc.ca/
- Offers training workshops, newsletters and a lending library. This society is also responsible for the Office of the Provincial Advisor for the Aboriginal Infant Development programme
B C Aboriginal Network on Disability Society http://www.bcands.bc.ca/
- Provides a variety of support services and resources to help Bc's Aboriginal people with disabilities.
B C Association of Child Development and Intervention http://bcacdi.org/
- Provincial Association of agencies which provide child development and therapy services to children with special needs and their families in British Columbia
B C Centre for Disease Control http://www.bccdc.ca/default.htm
B C Crisis Centres http://www.communitycounselling.org/bc_crisis_centres.htm
B C Housing http://www.bchousing.org/ and http://www.bchousing.org/aboutus/serve
- Subsidized housing
- Who can apply
B C Palliative Care and Hospice Association http://www.hospicebc.org/
Canuck Place http://www.canuckplace.org/
- Canuck Place Children's Hospice provides specialized pediatric palliative care for children living with a life-threatening illness and support for their families throughout British Columbia.
Child Care Services http://www.mcf.gov.bc.ca/childcare/
Children and Women's Health Centre of British Columbia http://www.cw.bc.ca/index.asp
- An agency of the Provincial Health Services Authority, made up of British Columbia's Children's Hospital, British Columbia's Women's Hospital and Health Centre and Sunny Hill Health Centre
Children and Youth with Special Needs (.pdf file) http://www.mcf.gov.bc.ca/spec_needs/pdf/CYSN_FrameWorkForAction_Combo_LR.pdf
Children and Youth with Special Needs (link) http://www.mcf.gov.bc.ca/spec_needs/
- Responsible for providing a range of services and supports for children and youth with special needs and their families.
Chronic Disease Management http://www.health.gov.bc.ca/cdm/
Chronic Disease Self Management http://www.coag.uvic.ca/cdsmp/
Community Living BC http://www.bcacl.org/
- Responsible for delivering services and supports for adults with developmental disabilities
Disability Permits for vehicles http://www.sparc.bc.ca/
Employment and Assistance for Persons with Disabilities http://www.mhr.gov.bc.ca/PUBLICAT/VOL1/Part3/3-4.HTM
Family Hearing Resource Centre http://www.bcfamilyhearing.com/
- A provincial programme that provides comprehensive services to families with young deaf and hard of hearing children throughout B C.
Family Support Institute http://www.familysupportbc.com/
- A province-wide organization that supports families who have a family member with a disability.
Fertility and IVF Programme http://www.ubcfertility.com/
Health Link BC http://www.healthlinkbc.ca/
Medical Services Plan of BC http://www.health.gov.bc.ca/msp/
Ministry of Advanced Education http://www.gov.bc.ca/aved/
- Responsible for education services to adults with disabilities
Ministry of Education http://www.gov.bc.ca/bced/
Ministry of Health http://www.gov.bc.ca/health/
- Responsible for ensuring that quality, appropriate and timely health services are available to all British Columbians
Ministry of Housing and Social Development http://www.gov.bc.ca/hsd/
- Responsible for education and support payments, work programmes, bus passes and health and dental benefits for persons with disabilities
Physiotherapy Association of BC http://www.bcphysio.org/app/index.cfm?fuseaction=pabc.home
PovNet BC (support and advocacy) http://www.povnet.org/
Provincial Health Services Authority http://www.phsa.ca/default.htm
- Responsible for overseeing the coordination and delivery of provincial programmes and highly specialized health care services, including assessment and diagnosis
Provincial Outreach Programmes http://www.popbc.ca/
- Provides programming consultation and support to school districts to help meet the educational needs of low-incidence students in BC School Districts
Provincial Services for Deaf and Hard of Hearing http://www.mcf.gov.bc.ca/psdhh/index.htm
Sunny Hill Health Centre for Children http://www.bcchildrens.ca/Services/SunnyHillHealthCtr/default.htm
- Offers specialized services to children with disabilities, their families and communities throughout British Columbia. Sunny Hill serves children from birth to 19 years.
Toll-free information lines http://www.health.gov.bc.ca/cpa/1-800.html
Travel Assistance Plan http://www.health.gov.bc.ca/msp/mtapp/index.html
- Forms available at referring doctor's office. Provincial government will pay ferry fares or partial air fare for patient and escort traveling together to an appointment more than 50 miles away requiring ferry or air transport.
Vocational Rehabilitation http://vracanada.com/alberta.php
Western Institute of the Deaf and Hard of Hearing http://www.widhh.com/
Work Safe BC - Rehab and Return to Work http://www.worksafebc.com/claims/rehab_and_rtw/default.asp
Manitoba:
* Provincial Disability search http://listingsca.com/Manitoba/Health/Disabilities/
Child Care Subsidy and Disability child care support cdcinfo@gov.mb.ca
Children's Special Services http://www.gov.mb.ca/fs/pwd/css.html#content
- Programme provides services and support to families who may need assistance with some of the extraordinary demands of caring for a child with disabilities. With supports, families are better able to care for their children at home within their communities, where the children grow and thrive.
Employment and Income Assistance http://www.gov.mb.ca/fs/assistance/eia.html
Income Assistance for Persons with Disabilities http://www.gov.mb.ca/fs/pwd/iapd.html#content
Manitoba Child Benefit http://www.gov.mb.ca/fs/assistance/mcb.html#content
Manitoba Hospice and Palliative Care http://www.manitobahospice.ca/
Manitoba Health http://www.gov.mb.ca/health/
Manitoba Pharmacare Program (prescription coverage): http://www.gov.mb.ca/health/pharmacare/index.html
Ministry of Education http://www.edu.gov.mb.ca/k12/
Ombudsman http://www.ombudsman.mb.ca/
Services for Persons with Disabilities and Children's Services http://www.gov.mb.ca/fs/pwd/
Society for Manitobans with Disabilities http://www.smd.mb.ca/
Supported Living Services http://www.gov.mb.ca/fs/pwd/supported_living.html#content
- provide care and accommodation to assist adults with a mental disability to live in the community in their residential option of choice including a family home, independent living and residential care facilities.
- Day Services - include supported employment and follow up services, services with a vocational focus and personal development services.
- Support Services - include respite for caregivers, crisis intervention, and other supports required to individuals and families in need.
- In Company of Friends Program - provides adults with a mental disability the opportunity to create and manage their own services through direct funding. The person receives assistance to make his/her own decisions from their support network of family and friends.
Vocational Rehabilitation http://www.gov.mb.ca/fs/pwd/voc_rehab.html#content
New Brunswick:
* Provincial Disability search http://listingsca.com/New-Brunswick/Health/Disabilities/
Chronic Disease Self Management Programme http://app.infoaa.7700.gnb.ca/gnb/Pub/EServices/ListServiceDetails.asp?ServiceID1=200753&ReportType1=ALL
Department of Education http://www.gnb.ca/0000/
Designated Disabled Parking http://app.infoaa.7700.gnb.ca/gnb/Pub/EServices/ListServiceDetails.asp?ServiceID1=14197&ReportType1=All
Disability Support Programme http://app.infoaa.7700.gnb.ca/gnb/Pub/EServices/ListServiceDetails.asp?ServiceID1=200972&ReportType1=ALL
Housing Assistance http://app.infoaa.7700.gnb.ca/gnb/Pub/EServices/ListServiceDetails.asp?ServiceID1=19576&ReportType
New Brunswick Health http://www.gnb.ca/0051/index-e.asp
Ombudsman http://www.gnb.ca/0073/index-e.asp
Persons with Disabilities framework http://www.gnb.ca/0017/Disabilities/wgindex-e.asp
Services for Children with Special Needs http://app.infoaa.7700.gnb.ca/gnb/Pub/EServices/ListServiceDetails.asp?ServiceID1=10195&ReportType
Social Assistance http://app.infoaa.7700.gnb.ca/gnb/Pub/EServices/ListServiceDetails.asp?ServiceID1=10295&ReportType1
Vocational Rehabilitation Programme http://www.gov.mb.ca/fs/pwd/voc_rehab.html
Newfoundland and Labrador:
* Provincial Disability search http://listingsca.com/Newfoundland/Health/Disabilities/
Newfoundland list of Services and Links for Disabled people http://www.health.gov.nl.ca/health/personsdisabilities/
Disability Policy Office http://www.hrle.gov.nl.ca/hrle/disabilities/DPO.html
Education http://www.ed.gov.nl.ca/edu/
Employment Assistance http://www.hrle.gov.nl.ca/hrle/disabilities/services.html
Health and Community Services http://www.health.gov.nl.ca/health/personsdisabilities/fundingprograms_hcs.html
Independent Living Institute http://www.independentliving.org/donet/267_independent_living_resource_centre_st_johns_newfoundland.html
Job Training and Vocational Rehabilitation services http://www.manta.com/world/North+America/Canada/Newfoundland/job_training_and_vocational_rehabilitation_services--F014B/
Learning Disabilities Association http://www.nald.ca/ldanl/main.asp
North West Territories:
* Provincial Disability search http://listingsca.com/North-West-Territories/Health/#disability
Department of Health and Social Services
http://www.hlthss.gov.nt.ca/
http://www.hlthss.gov.nt.ca/english/social_services/default.htm
- Department of Health and Social Services
Government of the Northwest Territories
Box 1320 Yellowknife, NT X1A 2L9
Phone: (867) 873-7046 Fax: (867) 873-7706
Education, Culture and Employment http://www.ece.gov.nt.ca/
Extended Health benefits for Specified Diseases http://www.hlthss.gov.nt.ca/english/services/health_care_plan/specified_diseases/default.htm
Metis Health benefits http://www.hlthss.gov.nt.ca/english/services/health_care_plan/metis_benefits/default.htm
Publications for Persons with Disabilities in NWT http://www.hlthss.gov.nt.ca/content/Publications/subject/publications_persons_with_disabilities.asp
Supplementary Health Benefits supplementaryhealthbenefits@gov.nt.ca
Nova Scotia:
* Provincial Disability search http://listingsca.com/Nova-Scotia/Health/#disability
Community Organization Network http://www.nsnet.org/
Disability parking http://www.gov.ns.ca/snsmr/rmv/registration/mobility.asp
Employment Support and Financial Assistance http://www.gov.ns.ca/coms/employment/
Health Department http://www.gov.ns.ca/health/
Hospice / Palliative Care http://www.nshpca.ca/
Nova Scotia Department of Education http://www.ednet.ns.ca/
Services for Persons with Disabilities http://www.gov.ns.ca/coms/disabilities/
- Many links on this website
Nunavut:
* Provincial Disability search http://listingsca.com/Nunavut/Health/#disability
Government of Nunavut, Health and Social Services http://www.gov.nu.ca/health/
- PO Box 1000, Sta. 1000
Iqaluit, NU
X0A 0H0
Ph: (867) 975-5700 - The Department of Health and Social Services provides a broad range of programs and services in the following areas:
Primary and acute health, both inpatient and ambulatory
Child protection
Family services
Mental health
Government of Nunavut, Department of Education http://www.edu.gov.nu.ca/
Income Support Programme http://www.edu.gov.nu.ca/apps/authoring/dspPage.aspx?page=37
Social Assistance http://www.edu.gov.nu.ca/apps/authoring/dspPage.aspx?page=38
Ontario:
* Provincial Disability search http://listingsca.com/Ontario/Health/#disability
Ministry of Child and Youth Services www.gov.on.ca/children/english/programs/needs/index.html
- 1-866-821-7770 for special needs resources, programs and services
- Assistance for Children with Severe Disabilities (Mito qualifies)
- Parents get $25-430 per month to help with costs of such as traveling to doctors and hospitals, special shoes, clothing, parental relief, assistive devices etc. Eligibility is based upon family income.
- Child care for children with special needs
- Children with autism
- Behavioral Management programs
- Infant development programs
- Children's rehabilitation services
- Children's treatment centres
- Infant Hearing Program
- Preschool speech and language program
- Respite services
Special services at home (some mitochondrial diseases covered depending on severity) http://www.provincialadvocate.on.ca/main/en/about/aboutus.cfm
Social Assistance in Ontario http://www.accesson.ca/en/mcss/programs/social/
- Ontario Works (OW)
- Ontario Disability Supports Program (ODSP)
- The Ontario Disability Support Program Income Support helps people with disabilities who are in financial need pay for living expenses, like food and housing.
-
- OW or ODSP office locator http://www.mcss.gov.on.ca/mcss/owapp/Locator/index.aspx?lang=en
Ontario Legal Aid http://www.legalaid.on.ca/en/getting/
- You can call Legal Aid Ontario toll-free at 1-800-668-8258 or 416-979-1446 to speak to a representative. Legal Aid Ontario accepts collect calls.
Ontario Ministry of Education http://www.edu.gov.on.ca/eng/
Ontario Ministry of Health and Long Term Care http://www.health.gov.on.ca/
Ontario Associations and Organizations
Autism Society Ontario www.asohalton.org
Asperger's Society Ontario www.aspergers.ca
Centre for Childhood disability Research: www.canchild.ca
Community Networks of Specialized Care: www.community-networks.ca
- For adults with a developmental disability who need specialized care for co-existing mental health and or behavioral issues.
Erin Oak Kids www.erinoakkids.ca
- client Services Intake - 905-855-3557 Toll free 1-877-ERINOAK
- Clients served in the region of Halton, Peel, Waterloo, or Wellington-Dufferin
- Workshops
- Support groups
- Teen drop -in
- Autism intervention services
- Speech, physio, occupational therapy etc.
Central West Infant Hearing Program 1-866-764-9606
Central West Autism Intervention Services 1-866-7772-7702
Geneva Centre for Autism www.autism.net
- 416-322-7877 Toronto
- Support groups
- Social skills development
- Respite
- Resource lending library
- School board services
Kerry's place Autism Services www.kerrysplaceautismservices.com
- 905-457-8711 Brampton
- Children's and adults
- Residential program
- Respite
- Various workshops
- Resource library
Learning Disability Assoc. www.ldatd.on.ca
- 416-229-1680 Toronto
Ombudsman Ontario http://www.ombudsman.on.ca/
Ontario Adult Autism Research and Support Network www.ont-autism.uoguelph.ca
Ontario Association of Children's Rehabilitation Services www.oacrs.com/
Ontario Early Years Centers: www.ontarioearlyyears.ca/oeyc/oeyc.htm
- Preschool programs and resources offered to both Halton and Peel Regions
Ontario Trillium Foundation www.trilliumfoundation.org
ROCK Reach Out Center for Kids www.rockonline.ca
- 471 Pearl St. Burlington, ON
- 905-634-2347
- wide range of services from individual counseling, support of families with various mental disorders and also provides OHIP covered assessments.
The Ontario Camping Association www.ontariocamps.ca
- maintains a list of special needs camps that meet and maintain high provincial standards for children with various disabilities and disorders.
Vocational Rehabilitation - March of Dimes http://www.marchofdimes.ca/dimes/corporate_rehab/programs_and_services/vocational_rehab/
Government of Prince Edward Island:
* Provincial Disability search http://listingsca.com/Prince-Edward-Island/Health/#disability
Government of Prince Edward Island http://www.gov.pe.ca/
Community Services, Seniors and Labour http://www.gov.pe.ca/sss/index.php3?number=1025792&lang=E
Education and Early Childhood Development http://www.gov.pe.ca/education/
Disability Support Programme http://www.gov.pe.ca/sss/index.php3?number=20667&lang=E
Disability Parking permit http://www.gov.pe.ca/infopei/index.php3?number=49728
Health and Wellness http://www.gov.pe.ca/health/
Supports for People with Disabilities http://www.gov.pe.ca/sss/index.php3?number=1018613
Vocational Rehabilitation http://www.gov.pe.ca/sss/index.php3?number=1025792&lang=E
Government of Quebec:
*Provincial Disability search http://listingsca.com/Quebec/Health/#disability
Chronic Disease Self Management Programme http://mytoolbox.mcgill.ca/en/index.php
Disability Information - tax http://www.rrq.gouv.qc.ca/en/invalidite/Pages/invalidite.aspx
Disability Supports Deduction http://www.revenu.gouv.qc.ca/en/citoyen/clientele/handicape/deficience.aspx
Education http://www.mels.gouv.qc.ca/gr-pub/m_englis.htm
Employment Insurance (maternity, parental and sickness) - Quebec http://www.servicecanada.gc.ca/eng/ei/types/special.shtml
Quebec Health Care http://www.msss.gouv.qc.ca/en/
Government of Saskatchewan:
* Provincial Disability search http://listingsca.com/Saskatchewan/Health/#disability
Child Care Subsidy Programme http://www.socialservices.gov.sk.ca/childcare
Department of Health http://www.health.gov.sk.ca/
Employability Assistance for People with Disabilities http://www.aeel.gov.sk.ca/eapd/
First Nations and Metis Services Telephone: (306) 787-3949
Housing for Persons with Disabilities http://www.socialservices.gov.sk.ca/disability-housing
- Financial assistance allows homeowners and owners of rental properties to improve their dwellings so that they are more accessible to persons with disabilities
Office of Disability Issues http://www.socialservices.gov.sk.ca/office-disability
- Has a direct working relationship with other government ministries, the disability community and the public
Parking Programme http://www.abilitiescouncil.sk.ca/html/parking_program_people_disabilities/index.cfm
Persons with Disabilities Online http://www.pwd-online.ca/pwdl.3st@.jsp?geo=4&cat=5_29
Saskatchewan Assistance http://www.socialservices.gov.sk.ca/sap
- Information on programmes and services for families and individuals who, for various reasons, cannot meet basic living costs
Saskatchewan Assured Income for Disability (.pdf file) http://www.socialservices.gov.sk.ca/Introducing-SAID.pdf
Saskatchewan Employment Supplement http://www.socialservices.gov.sk.ca/ses
Saskatchewan Public Policy on Disabilities http://esask.uregina.ca/entry/disability_citizenship_and_public_policy.html
Saskatchewan Rental Housing Supplement http://www.socialservices.gov.sk.ca/srhs
Government of Yukon:
* Provincial Disability search http://listingsca.com/Yukon/Health/#disability
Community directory for special needs http://www.wholistichealthyukon.org/crd/specialneeds.htm
Ministry of Education http://www.education.gov.yk.ca/
Services for people with disabilities http://www.hss.gov.yk.ca/disabilites.php
Yukon Health Guide http://www.ykhealthguide.org/
Yukon Health and Social Services http://www.hss.gov.yk.ca/
- Telephone: (867) 667-3002
Yukon government http://www.gov.yk.ca/
Organizations granting wishes
The Children's Wish Foundation of Canada http://www.childrenswish.ca/
95 Bayly Street, Suite 404 Ajax, Ontario Canada L1S 7K8
Phone: (905) 426-5656
Fax: (905) 426-4111
The national office for the Children's Wish Foundation of Canada.
This organization with 12 provincial Chapter Offices from coast to coast is dedicated to fulfilling a favorite wish for children afflicted with a high risk, life-threatening illness. Parents can contact the national office for the chapter closest to them. The goal of the foundation is to provide a once in a lifetime experience for children suffering from high risk life-threatening diseases. Children are eligible from 3 years of age and over but under the age of 18 years before the time the request is received.
Children's Wish will fulfill the favourite wish for any child not expected to reach age 18. Wach wish, truly the child's own, must be completed while the child is healthy enough to enjoy it. The immediate family is included in the wish fulfillment, so that the child and family will share in the experience and create happy memories together.
- 1-800-323-WISH
For children under age 3 (chronologically or cognitively)
http:// childrenswish.org/youngminds.html
Make-a-Wish Foundation of Canada http://www.makeawish.ca/
This organization, which serves various regions in Canada seeks to fulfill the special wishes of children under the age of 18 who have life-threatening illnesses.
Starlight Children's Foundation http://www.starlight.org/
This organization is dedicated to brightening the lives of seriously ill children through wish granting and state-of-the-art in-hospital entertainment. It has a network of chapters located in the United States, the United Kingdom, Australia, and Canada
Sunshine Foundation of Canada http://www.sunshine.ca/
This foundation allows children with a severe physical disability or life-threatening illness to have a chance to see their once-in-a-lifetime dream come true.
Tender Wishes-Canada http://www.tenderwishes.org/
This organization grants wishes to children between the ages of 2 and 18, who have a life-threatening illness, and reside in the Regional Municipality of Niagara, Ontario.
Second Wind Dreams www.secondwind.org
678-624-0500
A non-profit organization that grants wishes to older adults living in eldercare facilities or in hospice care. They have granted wishes throughout the United States, Canada as well as India.
Make a Wish Foundation International www.worldwish.org
602-230-9900
Grants wishes to children with a life-threatening medical condition up until the age of 18 in 28 countries and regions outside of the United States.
The Rainbow Society of Alberta
roxanner@rainbowsociety.ab.ca
www.rainbowsociety.ab.ca
6604 82nd Avenue
Edmonton, Alberta, Canada T6B0E7
Phone: 780-469-3306
Email: roxanner@rainbowsociety.ab.ca
Hospitals and / or Mitochondrial Clinics
Alberta
Inherited Metabolic Disorders Clinic http://www.medicalgenetics.ca/inherited.html
Alberta Children's Hospital,
2888 Shaganappi Trail NW, Calgary, Alberta, T3B 6A8
Phone: (403) 955-5030
Fax: (403) 955-3091
Sees adults as well; covers southern Alberta, southeastern British Columbia and southwestern Saskatchewan
- Dr Aneal Khan - medical genetics and paediatrics Aneal.Khan@albertahealthservices.ca
- Dr Robin E. Casey - medical genetics and pediatrics Robin.Casey@albertahealthservices.ca
- Dr. Patrick Ferreira - medical genetics and pediatrics patrick.ferreira@albertahealthservices.ca
British Columbia
Centre for Biomedical Research, University of Victoria http://cbr.uvic.ca/index.php
- Dr Patrick MacLeod http://cbr.uvic.ca/index.php?option=com_content&task=view&id=62&Itemid=84
Child and Family Research Institute http://www.cfri.ca/index.asp
Room C 234, 4500 Oak Street
Vancouver BC V6H 3N1
- Dr. Lorne A Clarke - Medical Genetics and Health ph. 604 875 2157 http://www.cfri.ca/our_research/researchers/search_researchers/researcher_detail.asp?ID=24
- Dr Sylvia Stockler - Biochemistry http://www.cfri.ca/our_research/researchers/search_researchers/researcher_detail.asp?ID=255
Vancouver General Hospital http://www.vch.ca/
Provincial Adult Metabolic Clinic http://www.vch.ca/find_services/find_services/?&program_id=106
- Vancouver General Hospital, Diamond Health Care Centre
- 4th Floor, 2775 Laurel Street, Vancouver, B. C. V5Z 1M9
- Tel.: 604-875-4111 ext 61323 Fax: 604-875-5967
- Dr. Sandra Sirrs - endocrinology
- Dr. Michelle Mezei - neurology
- Dr Andre Mattman - biochemistry
Westside Integrated Health Centre
- 130 - 180 Wilson Street, Victoria, BC V9A 7N6
- Tel.: 250-385-5255
- Dr. Andrew Penn - neurology
- Sees adults
Manitoba
Health Sciences Centre
- 2nd and 3rd floor, Community Services Building
- 685 William Avenue, Winnipeg, Manitoba R3A 1R9
- Tel: 204-787-2494
- Fax: 204-787-1419
Genetics and Metabolism http://www.wrha.mb.ca/prog/genetics/index.php
- Dr Cheryl Rockman - Greenburg
- Dr Aziz Mhanni
Maritime Provinces (New Brunswick, Newfoundland, Nova Scotia, Prince Edward Island)
- Maritime provinces are served by Nova Scotia
- Outreach clinics are held in Summerside and Charlottetown, Prince Edward Island, and in Fredericton, New Brunswick. Tele-health is extensively used for counselling patients from across the Maritimes, who would otherwise have to travel great distances to be seen in Halifax.
IWK Health Centre Foundation http://www.iwk.nshealth.ca/index.cfm?objectid=B2B9F409-D291-878D-1A6F8F89710FDC83
Maritime Medical Genetics http://pediatrics.medicine.dal.ca/clinical/medical_genetics.htm
- 5850 / 5980 University Avenue, P. O. Box 9700. Halifax, NS B3K 6R8
- Phone: 902 470 8754
- Fax: 902 470 8709
- Jonathan Kronick jonathan.kronick@iwk.nshealth.ca
Northern Territories (North West Territories, Nunavut, Yukon)
Nunavut
Served by Health Sciences Centre in Winnipeg, Manitoba http://www.wrha.mb.ca/prog/genetics/index.php
Ontario
Kingston General Hospital
Genetics Clinic
- 20 Barrie Street, Kingston, ON K7M 3J6,
- Tel: 613-533-6310,
London Children's Hospital (London, ON) http://www.lhsc.on.ca/About_Us/Childrens_Hospital/
Centre for Inherited Metabolic Disorders http://www.lhsc.on.ca/Patients_Families_Visitors/Genetics/Inherited_Metabolic/index.htm
London Health Sciences Centre
Victoria Hospital
- Zone E, Level 5 (old Westminster Tower)
800 Commissioners Road East, London, Ontario N6A 5W9
- Children's Hospital 519-685-8500
- Patient Information: 519 663-3163
Media Relations: 519-667-6760
Patient Relations: 519-685-8500
- Dr. Chitra Prasad - Metabolic Sp. http://www.lhsc.on.ca/About_Us/LHSC/Publications/2010/stories/story03/index.html
- Narayan Prasad - Neurometabolic Sp
- Dr Charles (Tony) Rupar - Biochemical Genetics Sp
- Dr. Sharon Goobie
McMaster Children's Hospital (Hamilton/Niagara) www.mcmasterchildrenshospitaal.ca/
- Mitochondrial specialty - Dr. Mark Tarnopolsky http://fhs.mcmaster.ca/pediatrics_research/tarnopolsky_mark.html
- Ph: 905-521-2100 x 75226
- sees adults and children
North York General Hospital (Toronto) www.nygh.on.ca
Genetics Programme http://www.nygh.on.ca/programs/genetics.html
- North York General Hospital
4001 Leslie Street, Toronto, Ontario M2K 1E1 - Main phone number: (416) 756-6000
Branson Site
555 Finch Ave. West, Toronto, Ontario M2R 1N5
Main phone number: (416) 633-9420
Seniors' Health Centre
2 Buchan Court, Toronto, Ontario M2J 5A3
Long-term care home: (416) 756-0066
Specialized Geriatric Services: (416) 756-6050 ext. 8060
Children's Hospital of Eastern Ontario (Ottawa)
Department of Genetics, Children's Hospital of Eastern Ontario, http://www.cheo.on.ca/En/genetics
- 401 Smyth Road, Ottawa,ON K1H 8L1
- Tel: 613-737-2275
- Fax: 613-738-4822
Toronto General Hospital
- University Health Network
Adult Genetics Programme, Toronto General Hospital http://www.uhn.ca/Clinics_&_Services/services/adult_genetics/index.asp?nav=3;3
- 200 Elizabeth Street, Toronto, ON M5G 2C4,
- Tel: 416-340-4800 Ext 6632,
- Fax: 416-340-3709
Toronto Hospital for Sick Children (Toronto) http://www.sickkids.ca/
The Hospital for Sick Children, Division of Clinical and Metabolic Genetics http://www.sickkids.ca/cgenetics/index.html
555 University Avenue, Toronto, Ontario M5G 1X8
Tel: 416-813-6390
Fax: 416-813-5345
- staff http://www.sickkids.ca/CGenetics/Who-we-are/index.html
- Paediatric patients
Quebec
CHUL Ste Foy
- Serves children
- 2705 Boul Laurier, Ste Foy, Quebec City, Quebec G1V 4G2
- Tel: 418-656-4141
- Dr. Bruno Maranda, medical geneticist
- Dr. Helene Roy, paediatrician
- Dr. Julie LaFlame
Montreal Neurological Institute & Hospital
Neurology Dept.
- Serves adults
- 3801 University Street
Montreal QC H3A 2B4 - Tel: (514) 398-5262 Fax: (514) 398-8310
- Dr. Angela Genge angela.genge@mcgill.ca
Ste. Justine Hospital www.chu-sainte-justine.org
- 3175, Chemin de la Côte-Sainte-Catherine
Montreal, Quebec
Canada, H3T 1C5 - Tel: (514) 345-4931
- Metabolic and Genetic Diseases
- Serves children
- Tel: 514-412-4418 Fax: 514-412-4329
- Dr Serge Melancon
- Dr Grant Mitchell
Saskatchewan
- Serviced by Alberta
Inherited Metabolic Disorders Clinic http://www.medicalgenetics.ca/inherited.html
Alberta Children's Hospital, Inherited Metabolic Disorders Clinic (Calgary, AB)
- 2888 Shaganappi Trail NW, Calgary, Alberta, T3B 6A8
- Phone: (403) 955-7587
Fax: (403) 955-3091
Sees adults as well; covers southern Alberta, southeastern British Columbia and southwestern Saskatchewan
- Dr Aneal Khan - medical genetics and paediatrics http://www.medicalgenetics.ca/aneal/index.html
- Dr Robin E. Casey - medical genetics and pediatrics http://www.medicalgenetics.ca/robin.html
- Dr. Patrick Ferreira - medical genetics and pediatrics patrick.ferreira@albertahealthservices.ca
Mitoaction wishes to thank the following Canadians who provided the information to make these resources available to Canadian Mitochondrial Disease patients and their families:
- Jean Shepherd
- Carolyn Slizys-Scholey
- Cindy Baldassi
- Ken Graham
- Matthew Graham
- Mrs M. O'Riley
- Janice Dodds
Doctor Information
- Lidia Marandola
- Sarah Boucher
- Dr M. Tarnopolski
- Dr S. Sirrs
- Dr A. Mattman
- Ms W. Faulk
- Cynthia Bertani