Calls

  • Hot topics

    by GingerD

    We will announce information on upcoming teleconferences  as well as post previous calls here. Check back regularly.

     

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    • Mar 2, 2011
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  • February 2012 Teleconference

    by GingerD

    February 2012 Teleconference
    Written By: Alyssa Davi

    February 14, 2012

    February’s teleconference was an opportunity for families to call in and ask their
    questions regarding autism and mitochondrial disease meet other families with
    diagnosed children and gain valuable accurate information. Below is a list of some
    questions asked by callers and responses provided by Cristy Balcells, Kathy Rivers and
    Alyssa Davi.

    Question #1-
    Can you tell me what baseline genetic tests should be done for a child with

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    • Apr 5, 2012
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  • April 2012 Topic

    by GingerD

    Join us Tuesday, April 10, for an informal discussion about folate disorders, inborn errors of folate metabolism, cerebral folate receptor autoantibodies, autism and mitochondrial dysfunction.

    What do we know about disorders of folate and inborn errors of folate?

    What do we know about folate polymorphisms and autism?

    What new research has recently emerged regarding folate and autism?

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    • Mar 7, 2012
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  • January 2012 Teleconference

    by GingerD

    Written By: Alyssa Davi


    January 10, 2012

    January’s teleconference was an opportunity for families to call in and ask their questions regarding autism and mitochondrial disease, meet other families with diagnosed children and gain valuable accurate information. Below is a list of some questions asked by callers and responses provided by Cristy Balcells and Alyssa Davi.

    Question #1-

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    • Feb 7, 2012
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  • December 2011 teleconference

    by GingerD

    Written By: Alyssa Davi and Kathy Rivers
    December 13, 2011
    The December teleconference discussed the topic of  “Anesthesia & Mito: Risks,
    Protocols, and Precautions” as follow-up to Dr. Andre Mattman’s teleconference,
    which took place on MitoAction on December 2, 2011.

    For a copy of Dr. Mattman’s notes from this teleconference please visit this link:
    http://www.mitoaction.org/files/Anesthesia.pdf

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    • Dec 20, 2011
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  • October 2011 Teleconference

    by GingerD

    Written By: Alyssa Davi and Kathy Rivers

    October 11, 2011

    October’s teleconference was an opportunity for families to call in and ask their questions
    regarding autism and mitochondrial disease, meet other families with diagnosed children and
    gain valuable accurate information. Below is a list of some questions asked by callers and
    responses provided by Cristy Balcells, Kathy Rivers and Alyssa Davi.

    Question #1-
    I am having difficulty finding a physician to evaluate my child with autism for mitochondrial

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    • Nov 9, 2011
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  • September 2011 Teleconference

    by GingerD

    Dysautonomia in children with autism and overlapping mitochondrial disease

    Compiled and written by: Cristy Balcells and Alyssa Davi
    September 13, 2011

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    • Sep 13, 2011
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  • August 2011 Teleconference

    by GingerD

    Informal discussion of fever and regression in children with autism and
    mitochondrial disease; management and research

    Compiled and written by: Alyssa Davi

    August 9, 2011

    It has been known that people with mitochondrial disease are sensitive to many different
    stressors, one being fever, for several decades now.

    Many people with mitochondrial disease have baseline temperatures that are below
    normal (by as much as 2-5 degrees Fahrenheit), and even lower baseline measurements

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    • Aug 24, 2011
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  • July 2011 Teleconference

    by GingerD

    Written by: Alyssa Davi, parent advocate

    July 12, 2011 teleconference

    Summary and further discussion of Dr. Kendall’s tele-conference held on July 8th

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    • Jul 12, 2011
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  • Information for parents and clinicians

    by GingerD

    by Cristy Balcells

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    • Jul 12, 2011
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