Adult Patients
Rocco, You're Not Alone
Congratulations Rocco on making it to the World Series! We continue to offer our encouragement and support.
Original Post August 8, 2008
Tampa Rays MLB player Rocco Baldelli Living with Mitochondrial Disease
He's in the news. His symptoms are vague. He looks tired.
- Aug 8, 2008
- Comments: 1
Advocating for Yourself
I wish the doctors could figure out what's wrong with me or my child. We have been feeling sick for so long and nobody seems to know what to do.
How do we, as patients, learn to speak up and advocate for ourselves in these situations?
- Jul 29, 2007
- Comments: 3
Parent & Patient
It’s my fault – I passed this on to them. It’s hard to have dreams or goals for the future because of the uncertainty…”
- Jun 29, 2007
- Comments: 0
Sexuality
“But you don’t look sick! Can you have a normal relationship?”
Sexuality plays a big part in all our lives: young and old, sick and well, and should not be ignored when we are afflicted with Mitochondrial Disease. Similarly, sexual education should not be neglected in children who suffer from this disorder. Knowledge of sexuality, a healthy self esteem and adaptations made in our sexual relationships all play an important role in how we carry out our sex lives.
- Jun 29, 2007
- Comments: 1
Dealing with the Fatigue of Mito
The severe fatigue of mitochondrial disease (mito) can be one of the most difficult symptoms that people with mito suffer from. This article discusses the general overall tiredness experienced by people with mito.
- Apr 29, 2007
- Comments: 0
