Adult Patients
Muscle Biopsy Testing for Mitochondrial Disease
For many years, muscle biopsy has been considered the "best" way to obtain an accurate diagnosis of mitochondrial disease. Muscle biopsy is costly, it is invasive, and is occasionally controversial with results that can be difficult for patients and families to understand.
- Jul 6, 2010
- Comments: 0
Mitochondrial Toxicity
June 4, 2010
- May 17, 2010
- Comments: 6
Nutrition for Mitochondrial Disease Patients
NUTRITION FOR MITOCHONDRIAL DISEASE PATIENTS
with Abby Usen MS RD from
Tufts Floating Hospital for Children, Boston MAListen to the recording of the meeting here
- Apr 14, 2010
- Comments: 1
Becoming a Great Advocate: Advice for Parents & Adult Patients with Complex Needs
Becoming a great advocate: Advice for parents & patients with complex needs
Join us this month with Mark Korson MD and Maggie Orr RN MSN MEd from Tufts Floating Hospital for Children in Boston, MA to discuss the do's and don'ts of being an advocate.
Listen to this teleconference recording here- Mar 30, 2010
- Comments: 0
Psychiatric Disorders & Mitochondrial Disease
Depression, schizophrenia, bipolar disease, and other psychiatric diseases - what is the connection for patients with mitochondrial disease?
- Jan 13, 2010
- Comments: 0
Tips for enjoying the holidays
December 2009
Are you OVERWHELMED?
Click here to listen to the free audio recording of this broadcast here or in iTunes
SPECIAL OFFER UNTIL JANUARY 31, 2010!
- Dec 2, 2009
- Comments: 4
Coping with mitochondrial disease
How do you cope with the unpredictable, invisible disease?
TO LISTEN TO THE RECORDING OF THIS MEETING, CLICK HERE
- Sep 30, 2009
- Comments: 1
Mitochondrial Disease Awareness Week 2009
CELEBRATE INTERNATIONAL MITOCHONDRIAL DISEASE AWARENESS WEEK
September 20 - September 26, 2009 is International Mitochondrial Disease Awareness Week. During this week we renew our commitment to educate, support and advocate on behalf of mitochondrial disease patients and their families.
- Sep 21, 2009
- Comments: 0
Monkeys with Mito have Normal Babies - with a little help
Cristy's note - Rob from Bloomberg News called me this week and I connected him with Vamsi Mootha for an expert opinion. What do YOU think? Post a comment- share your thoughts!
- Aug 27, 2009
- Comments: 3
To Work, or Not to Work: Personal Disability choices
To work or not to work...that is the question
- Jul 30, 2009
- Comments: 0
