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Just thought Id say hello. I hope its OK to join your forum as Im from the  UK and so far this site has helped me a lot since being diagnosed with mitochondria myopathy last year which is  on top of a diagnosis of GA2 that I was given four years ago.I also have a son who is being tested as hes been ill with fatigue and other symptoms for 8 years.

I am paralysed as a result of the mito and GA2 as well as partially sighted and since the last crisis  my hearing  is now affected. Im finding it a very lonely time as there is little info on how to treat and manage things daily and Im mainly learning by error and finding out the hard way.

Im hoping to pick up tips from others on here and would love to make new friends who understand the constrints of living with mito.


Im looing k forward to reading all the information.



Lexicam24's picture



Hello and welcome! I am sorry to hear all you are going through. This forum is open to members from around the world and it is great to see you here. Heidi
lorimar's picture



welcome to the group; but since,I haven't been here in so Long...I guess, I'm a new bee too. Hi everyone. I was diagnosed with Mito in June of 2005..When, I was coming to talk here you all ware so friendly & knowledgeable....So here I am again to listen & help, when I can... God Bless, Lori :)