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| April MitoAction Newsletter |
April 2007 |
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MitoAction Flatbread Company Fundraiser
May 1st, 5-9 pm Bedford, MA
Dine-in or take-out (781-275-8200) and support MitoAction!
Don't miss it!
Committed to improving the everyday lives of people affected by Mito through support, education and advocacy |
Greetings MitoAction Friends!
On sunny days as the ground thaws
and the flowers bloom, many people feel gloriously alive during the
Spring. That feeling of being alive is so important to anyone who
is affected by mitochondrial disease. That is why MitoAction
exists - to help you LIVE with Mito. We are patients, parents,
volunteers, clinicians, family members, and friends who want to make
positive changes today that will improve the quality of life for anyone
who is living with this disease.
Join us - embrace the challenge and share your voice! We welcome
you! |
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| Children's illustrated G-tube book now available!
Available at no charge as a service of MitoAction
 Order copies of "Jeremy Jones"
Written
by mother, psychologist and MitoAction Board member Anne
Reckling, "When Jeremy Jones Stomach Stopped Working" is a
delightful book for children or siblings who may have or need a
g-tube.
Production
and distribution of "Jeremy Jones" is funded 100% by your
donations. Copies of the book are available at no charge as a
service of MitoAction to patients, parents, clinics, schools,
therapists, siblings and clinicians. Thank you for your support! |
| Mito 411:
Support for families by families
1-888-MITO-411
We are so pleased to announce the launch of Mito 411, a toll-free volunteer support line for mito patients and families.
Please note: This is a volunteer staffed support line and does not offer emergency or medical advice
Become a volunteer!
Mito 411 Volunteer Trainings:
April 25 @ 8:00 pm (EST)
or
April 27 @ 10:00 am (EST)
Toll-free 866-414-2828, participant code 017921
For more information, email your questions to director@mitoaction.org
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Friday May 4th at Noon (EST)
MitoAction General Meeting
 Join
us at our next general meeting. All of our meetings are offered
via toll-free conference call, 1-888-414-2828, participant code
017921. We look forward to hearing your voice - ALL are welcome!
Mito Awareness: Call to Action!
Advocacy & Awareness Committee
Meeting April 26, 7:00 pm (EST)
toll-free 866-414-2828,
participant code 017921
We
urgently need your participation during this meeting to help establish
awareness weeks in every State. Join us to learn more about
making a difference in your community!
Mito Family Social in Needham
May 20, 4:30 - 6:30 pm
Don't miss the last social of the year for the greater Boston area!!
Meet other mito patients, parents, spouses, and friends in a relaxed "purely social" atmosphere. Children welcome. Learn more... |
Help Wanted!
Technical Support needed
The Web Committee at MitoAction has been working
dilligently this year to bring you a new and improved website, which
will go "live" this May. Very exciting - we hope you check it out!
We
need volunteer assistance with technical support questions and
issues, especially from someone who knows anything about the Joomla!
open source content management system. If you can help, please
email Kim, our volunteer webmaster at webmaster@mitoaction.org
Thanks! |
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Monthly Mito Lesson: What are Mitochondria?
- Mitochondria are tiny organelles found in almost every cell in the body.
- They are known as the "powerhouse of the cell."
- They are responsible for creating more than 90% of cellular energy.
- They are necessary in the body to sustain life and support growth.
- They are composed of tiny packages of enzymes that turn nutrients into cellular energy
- Mitochondrial failure causes cell injury that leads to cell death. When multiple organ cells die there is organ failure.
Learn more at Mitochondrial Disease FAQ's
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Thank you for helping us to support patients and families affected
by mito! Email me anytime with your ideas, questions or
suggestions - your voice is important!
Happy Spring!
Cristy Balcells RN, MSN
Executive Director Mitochondrial Disease Action Committee
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| Save the
date! |
Mark your Mito Calendar!
September 23, Boston
June 13-16, San Diego
June 27 - July 1, Cape Cod
May 1,5-9 pm, Bedford MA
April 26, 7 pm
May 4, noon (est)
Mito 411 Volunteer Training*
April 25, 8 pm & April 27, 10 am
May 16, 8 pm & May 18, 10 am
May 20 4:30 pm, Needham, MA
* All meetings held EST via toll-free conference call unless otherwise noted: 866-414-2828, participant code 017921
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