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No Parent or Patient should ever feel Alone
Mito 411 offers toll-free support for patients BY patients
1-888-MITO-411
Many of us can personally relate to stories about a
long, difficult and confusing process when going through the
diagnosis period of mitochondrial disease. Why?
1.
The disease is under-recognized, misunderstood, and
under-diagnosed. 2. The symptoms are confusing and may not
make "sense". Treatments which are supposed to improve one's
symptoms may not help at all, or may make the symptoms worse!
Multiple organ systems and seemingly unrelated symptoms are actually a
hallmark of mitochondrial disease.
3.
Awareness is crucial. Many families who receive a Mito diagnosis
have never even heard the words, "Mitochondrial disease."
4. Physicians who specialize in mitochondrial and metabolic diseases are few and are often overwhelmed.
5. Families and patients - including adults - need one another.
We want to help. Support of Mito patients and families is why MitoAction exists today.
The
Mito 411 program was created to offer a way for patients or family
members who need support to be able to connect with a volunteer that
can relate. We send Mito 411 postcards to physicians and clinics
all over the country in an effort to let others know that they are not
alone.
Mito 411 needs volunteers for 2008!
Join us for a volunteer training, tonight at 8:00 p.m. (EDT) or Friday October 19 at 10:00 a.m. (EDT).
Trainings are held by phone, toll-free 866-414-2828, particpant code 017921, and last about an hour.
Thank you for sharing your energy! | 
Each
year we ask our community of parents, patients, family members, and
clinicians to share ideas and program suggestions which fulfill
MitoAction's mission of support, education, and advocacy.
