| October MitoAction Events
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| Joining Together for Mitochondrial Disease Awareness! |
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Connect with others who care about making a difference for adults and children who have Mito!
MitoAction General Meeting
Friday October 5
Noon (edt) by teleconference
toll-free 866-414-2828, participant code 017921
Agenda Items: Highlights from National Mito Awareness
Week, CoQ10 task force, Legislative efforts, Advocacy and support
groups, project proposal ideas for 2008 |
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Dear MitoAction friend,
What an amazing month September has been!
We are so proud
to work together with you -patients, parents, families, clinicians -
across the country and Canada to raise awareness about
mitochondrial disease and to creatively and effectively bring support
to patients and families in need.
Join us - we look forward to hearing your voice!
Be well,
Cristy
Cristy Balcells RN MSN
Executive Director
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 On
September 19, patients, parents and clinicians from MitoAction spoke to
Massachusetts legislators about the need for awareness of mitochondrial
disease. |
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| Do you have an idea? |
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Call for Project Proposals - share your ideas and put them into ACTION!
As an example, the children's g-tube book, which has now been printed and 1500 copies shared, was a 2006 project proposal idea!
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| Making Mito Memories
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On
September 18, Kathi Harris of West Orange, New Jersey was awarded a
Proclamation of recognition for Mitochondrial Disease Awareness in her
town. Mikey, age 3, who has Mito, is so proud of his mommy that she
could take part in the ceremony.
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| Raising Awareness |
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On September 27-30, the Lafond-Evans family sold refreshments
during the Warrensburg, N.Y. "World's Largest Garage Sale" in order to
raise awareness about Mito.
Mom Catherine has recently published a book, "My children and Mito" chronicling their journey. Learn more about her book. | |
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