Ava's page
| Posted: May 7th 2009 | |
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lindsayknops |
Print www.caringbridge.org/visit/avaknops
This details our search for a diagnosis, up until Ava was diagnosed with Complex III officially last week. Now it's all about finding the right team to help us with management, trying to keep her healthy, and daily life. __________________
Lindsay, mommy to Ava Bella, 5/4/05 Sarasota, Florida Recently diagnosed with Complex III...more testing is pending from Dr. S in ATL Some of Ava's issues include: severe GERD and GI dysmotility, former FTT, developmental delays and some Autistic characteristics, Sensory Integration Disorder, heat intolerance and temperature regulation issues, muscle weakness and fatigue, abnormal gait, hypotonia...and so on and so forth |