Ava's page

Posted: May 7th 2009

lindsayknops

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www.caringbridge.org/visit/avaknops

 

This details our search for a diagnosis, up until Ava was diagnosed with Complex III officially last week.  Now it's all about finding the right team to help us with management, trying to keep her healthy, and daily life. 

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Lindsay, mommy to Ava Bella, 5/4/05

Boston area, MA

Ava has a Complex III OXPHOS defect