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Brody Tucker

Posted: November 17th 2008

tuckers01

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My son, Brody, is affected with complex V mito disorder. He has point mutation on ATPase 6 & 8 genes. I have met only 1 person with the same diagnosis. I am always looking to meet with others with similar diagnosis. Brody also received a heart transplant at 3 months of age. I would also love to meet any mito kids post-transplant, as well! Please visit Brody's site at www.caringbridge.org/visit/brodytucker. He also has a site at www.carepages under brodytucker, if you have a carepage account.

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Melissa Tucker--Brody's mom
Heart transplant 8-1-07
Hypertrophic cardiomyopathy, complex V mitochondrial disorder, g-tube, broviac line
www.caringbridge.org/visit/brodytucker
MotherWhimsey's picture

welcome! I don't know

Submitted by MotherWhimsey on Tue, 11/18/2008 - 9:07am.

welcome! I don't know anything about transplants, but I did want to say hi and welcome to the board!
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Courey mom to Aniyah, 4.5 and Linden, 20 mos. Linden has Mito complex III deficiency with slight deficiencies in complexes I and II. He is o2 and tube dependant.

www.lindenberriesandrosebuds.blogspot.com

our report said probable

Submitted by polatty on Tue, 02/10/2009 - 10:20pm.

our report said probable oxphos disorder...complex v defect appears to be present. he had several things show up abnormal. it said they needed to do dna sequencing to find out more info. we haven't had a transplant. noah's gi track is greatly affected---on J feeds right now 24 hours a day. sleep apnea, hypotonia, delayed gastric emptying, intestinal pseudo-obstructions, developmental delays, pdd-nos...