Hello
| Posted: April 22nd 2009 | |
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mitomomx2 |
Print Hello everyone, My name is RoBen,My husband and I adopted our 2 children a brother and sister(each as babies)that have an un named mito disease. But are working with a team of Drs.who are trying to name it. they know our son's is in complex IV and our daughter's is in Complex III.The Drs are a little confused by this. Evan(11) is alot sicker than his sister Taylor(8)after finding this web site and read your messages to each other, I see I have so much still learn, about care for these children.They both are carnitine Deficient, maligent hyperthermia , muscle jerking when sleeping. Evan has alot more issuses, seizuries optic never damage his list goes on.Thank you for being out there! RoBen |
Hello! Welcome to the forum.
Submitted by cellolover on Thu, 04/23/2009 - 8:52am.
Rachel- I have abnormalities in Complex I,II, and V. I also married a wonderful man on June 5, 2010.
Rachel, you are so right.
Submitted by janice on Thu, 04/23/2009 - 10:45am.
Rachel, you are so right. Sometimes we tend to find someone that we really connect with and start e-mailing on the side,(guilty) which is great......but those conversations about Mito, don't get posted, and it is in sharing information on here, that we come to reconize patterns and possible solutions. So everybody ask away at questions, weather you think they are trivial or not! Nobody judges! This IS, how we find alot of answers. It is so nice to see more people adding to the forum! Welcome.
Welcome Roben, I hope the
Submitted by lorimar on Sat, 04/25/2009 - 4:26pm.