Help

I know nothing about the Mayo Clinic but wantedto assure of my prayers that they may find answers and treatment options for you. with love

Hi, currently we take our son Nehemiah to the Mayo Clinic, we've doctored there since he was born w/ his mito disease. They are very good, but remember, mitochondrial disease is a difficult disease to diagnose, understand, and prognose, and most doctors are still learning about it, even the ones at Mayo. They utilize a team approach, which has pros & cons. Pros being that many minds are working to solve your child's problems, come up w/ a treatment, and diagnose, however, you can get lost in the number of specialists and sometimes they say differing things about mitochondrial disease (again because it's difficult to understand). My husband and I have been frustrated several times, and have learned to schedule only so many appointments that at one time (so our whole family can handle it). I am always asking questions with our neurologist because she still likes to speak "doctor speak", but she's willing to answer. Hope this helps and please let me know if you have any other questions. Our neurologist is Dr. Renaud, we also work with a genetecist, a dietician, gastroenterologist, and opthamologist. Trisha Bailkey