HELP......Is there a support group

Is there a support group for MDA or Mitochondrial Myopathy that meets in Minnesota? I would prefer that it be as close to the Duluth area as possible but would travel an hour or two away. I am desperate to meet with others in person who are going through the same kinds of things. I do chat on the different chat sites and they are wonderful but talking face to face is much better for me. Does any one know of a group?

Patti

kalars69's picture

kalars69

07/17/2009

Hi Patti - There is a UMDF chapter in MN - meeting every 3-4 months I recall - usally at Childrens Hosp-Minneapolis. But no direct support group/chat besides Yahoo Mito group and forums like MitoAction's. There is another family in Duluth area, not sure if they post here or on Yahoo group. Welcome! Kelly-Ann in Minneapolis area

PS I'd be happy to help explain the Yahoo group and how to figure out messages, etc.! Or e-mail offlist here:  kalars69@yahoo.com