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Hi from Ireland

Posted: November 19th 2008

audsmcm

Hi from Ireland.

My name is Audrey, i have 4 children, my youngest 2 are twins now 3, one of the twins has mitochondria complex iv, hes doing really well which is still leading me to question his diognosis, the doctors thought he was small when he was born he was 3lb2oz,a twin and 5wks prem, so i put it down to that, but they did the muscle biopsy and got the diognosis Feb this year?

Ithink the hardest part of all this is not knowing what to expect,,the unexplained, how ive coped is i went through 3 stages, 1.Grieve it, 2.TRY & understand it & 3.TRY and get on with it....hes in preschool now and loving it, he has no sympthoms,a little small but my husbands family are small..anyway fingers crossed hell keep up the good work... New to the sit so hi to all from Ireland.

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Hi my name is Audrey.My son Mark is 3 and has mitochondria complex iv.

We live n Dublin Ireland. New to this site today.
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Welcome Audrey! I am

Submitted by kayjay on Wed, 11/19/2008 - 11:06pm.

Welcome Audrey! I am thrilled that you found this forum. Please check back regularly and know that there is a ton of information here about educating a child with Mito! Take a look at the Education section in the forum! I am so happy to hear that your son is doing so well.....as you put it so eloquently I believe that we all need at times to "try and get on with it"....welcome! Kayjay

Hi Audrey, I'm also Irish

Submitted by Siobhan on Sun, 11/23/2008 - 1:03am.

Hi Audrey,

I'm also Irish and have been living in Sydney, Australia for many years.   I have been diagnosed with Mitochondrial Disease now 2 years.    Was it a big job getting your son diagnosed in Ireland? and do you have all the help in medical field you need there?    

Siobhan 

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Siobhan

MotherWhimsey's picture

Hi and welcome! I hope your

Submitted by MotherWhimsey on Sun, 11/23/2008 - 9:32pm.

Hi and welcome! I hope your child continues to do so well!
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Courey mom to Aniyah, 4.5 and Linden, 20 mos. Linden has Mito complex III deficiency with slight deficiencies in complexes I and II. He is o2 and tube dependant.

www.lindenberriesandrosebuds.blogspot.com