Hydration

Might sound like a strange question (but nothing is ever normal with mito)do you use a lot of salt. my cardiologist of all people said to salt everything because the salt iill help absorb and keep the fluids that you are able to drink. I had 3 central lines for hydration . for me they were awesome they helped with all of symptoms. i did it everynight. i did still drink normally but the iv fluids were the extra boost i needed.

Hey, Anthony drinks atleast 100oz of liquid a day and he is only two. If he drinks any less per day we are usually in the ER for IV Fluids. All the regulars know him there. He ends up there almost every other month. Since we have gotten his feeding tube placed it is easier to help him control.Although lately even his feeds thru the tube are getting harder to get into him.Sometimes he is to tired to drink and other times he can drink 4 glasses at a time. I do know the IV helps him soooo much. But even with that sometimes we end up staying for a couple days to help him bounce back. Does anyone get continous drip of fluids. I think it would help him so much with everything. By the way love your posts. It seems like you guys have so much in common with my little man! He really helps me to have you guys here!

I have not had to go the IV route(yet). My 2 year old has a g tube and pedilyte in the g tube makes for a very happy boy! My son does digest food well also. He has issues when he is having a 'down' time but overall he digests well. My son's doctor explained to me that in people with issues of energy metabolism the kidneys do not reabsorb the water into the body well and therefore often urinate too much (my son!!) the electrolytes help the absorption process. Since using pedilyte for my son his urination has decreased somewhat so I think that is very true in his case.My son gets pedilyte in his tube during the night and during the day and when this is done he does drink much less orally. If his tube hydration is down at all he gets very thirsty. I think lots of people use central lines and IVs for hydration b/c it is so much less demanding on the body because it does not have to go through the digestive system. I think I have rambled and not really answered anything for you except to say that many people here have loads of problems with hydration and finding the right method for you can really change your daily life--it does for us. If IV work maybe you could do a regular schedule. My aunt is a cancer patient and she goes to her doc's office once or twice a week sometimes for hydration into her central line--it just changes her life when she does this proactivly. All the gatorade in the world does not seem to match it.

I have had problems staying hydrated. Lemonaid once per day is usually enough to fix this problem. My body doesn't tolerate salt well (the next day with all my muscles screaming in pain), but occassionally I need it if I have been sweating too much. Then I have a soup with a little bit of salt in it. I do drink a lot of water 60 oz minimum, but usually well over 100 oz per day.

Why does lemonaid help more than water?

You May actually find that Coca cola (the real thing) Is even better than lemonade, it actually has a really good concentration of the essential minerals etc. Flat Coke is ideal for anyone recovering from an episode of Diareoah and Vomiting. The reason it is better than water is because it is nearer the rehydration fluid in its trace elements salt and sugar. Hugs

I don't know why Lemonaid helps me feel less dehydrated. Since being on the Levocarnitine I have had fewer instances of dehydration. Before the Levocarnitine (started in February), I was dehydrated almost every day. I can't have any of the Energy drinks due to my food allergies. The only IV I tolerate is Lactated Ringers. I have a food allergy to Corn, so that removes several IVs as an option. I react badly to a Saline IVs. I do find that I need one caffeinated beverage per day. I currently prefer Pepsi One. Without it, I fall asleep easily usually embarrassingly. Example: Falling asleep while talking with someone.