Illness in the classroom

Posted: October 16th 2009

arktjk

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I am very distressed with what is going on in our son's classroom.  He is in regular 1st grade classroom and he is not really very affected with the melas, just some more mild problems, so on the whole he is still healthy.  The 2nd week of school a detailed letter went home to all parents addressing the fact that their is a student in the classroom who is more susceptible to infections(which he is) and that infections can have a serious negative affect on the child.  Specific guidlines were listed as to when to keep your sick child at home.  The school is working well with us and is completely understanding of our concerns in trying to keep our son as healthy as possible and knows we are very concerned in light of the recent death of our daughter, so the issue does not lie with the school.  This week while we had him out for a check-up one day it was reported 6 children were out sick, 2-3 were still in school who were sick and should have not been there and 1 case of confirmed flu, which is being presumed the H1N1, as well as some kids being sent back to school before they were better.  Therefore, since some sick childeren have been sent to school with who know's what (and that's not the point, it is still some kind of infection) we have made the decision to keep our son home the last 3 days so as not to expose him to these obvious infections.  He himself is not ill.  I am becoming frustrated since he is missing out on his education because other parents are not following the guidlines.  We are in the process of talking with the school about this issue and how to resolve it, so I am hoping we can come to some kind of reasonable solution to what will possibly continue to be an issue for the rest of winter.  We can't in good conscience send him to a place where we know there are infected people.  We have unfortunately learned that infections seem to be a major trigger through our experiences with our daughter.  Thus far our son has not been set back by any of the infections, but I feel like a person with mito is kind of a "ticking time bomb".  You never know when something is going to happen and we have know way of knowing just how many mutated mitochondria he has lurking inside his body.

Wondering if anyone else has encountered this with their children in the school environment?

I know it is a lot of rambling.

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Tina_EvesMum's picture

Hi Beth I do understand your

Submitted by Tina_EvesMum on Fri, 10/16/2009 - 11:07pm.

Hi Beth I do understand your frustration and your fear. Howeer you will never change the attitude of parents who send their kids to school no matter what. I also believe it is not fair to expect people with no experience of the life we live to try to understand these issues. Instead we have an agreement with our children's school that if there is an increased risk of infction then they will give as much information to us as possible to enable us to decide when to keeep our children home. We have three life threatened children and need to balance risk constantly I dont want to limit their lives unecesarily by wrapping them in cotton wool, but I want to protect them from real risk too....that is my job though and my choices to make. I cannot impose unrealistic limitations on others. hugs
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Tina Mum of 5 children Eve has just been given a suspected diagnosis of Mitochondrial Cytopathy.

I do not know what the future holds but I am glad I know who holds the future!

Hi Beth, I know quite a

Submitted by janice on Sat, 10/17/2009 - 10:46pm.

Hi Beth, I know quite a few parents that will home school during flu season. Is this possible for you? I know everyones situation is different. The Parents will pick up the week or 2 weeks, work and then turn it in, ect. Let's hope he avoids this nasty bug!

Thanks for your input

Submitted by arktjk on Sun, 10/18/2009 - 1:35pm.

Thanks for your input Janice. This is what we may have to do for a while. I am able to work on some of the work sheets with him, but that is such a small amount of what they do in school. The reading and writing I can also work on with him. We would have to ask that a home school teacher be brought in the house to work on everthing else. I am in no position to do all of what he needs because of my fatigue and lethargy levels. We will work wtih the school to see if we can come up with some idea-probably asking that they provide home schooling for him, as well as myself doing what I am capable of. So far they are understanding of our concerns. I really wish I was not in the positon I am in, which is having effects of this disease, which limits my abilities to fully provide what I would like to for our son. Thanks for all of your input :) Will let you know how it turns out. Beth
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Hi Beth, Often times when

Submitted by kayjay on Mon, 10/19/2009 - 10:29pm.

Hi Beth, Often times when parents are affected as well with Mitochondrial Disease, the added stressors of advocating and arranging school supports can be overwhelming as you stated above. Hopefully this is where I can help. Please contact me, Kirsten Casale at education@mitoaction.org as there are other alternatives that we can discuss. I would need some more information as to where you are located, does your son have an IEP or 504, and what type of school your son is attending to fully give you alternatives. May I also add my heartfelt condolences on the loss of your daughter. I am sure that your concerns for your son are valid and should continue to be addressed, please allow me to help if I can. Kirsten Casale-Chairperson for Education and Advocacy at Mitoaction