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Loss of reflexes and muscle tone

I am new to the forum.  My daughter Delia is suspected of having mito disease.  We are in the process of the testing and hopefully will get the complete diagnosis soon.  They have begun treating her already with the mito cocktail.  I have a quesiton for other parents as I am beginning to just understand the disease.  Delia is starting to lose all of her reflexes and also is having huge decreases in her muscle tone.  Has anyone else come across this at all? 

 

Thank you