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National Conference

Posted: June 23rd 2009

cellolover

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So, It's been pretty slow around here recently and I was wondering if that means that some of the US mito people are storming the capitol. If anyone reads this who has been to the conference, what is it like? Were you glad you went? Did you learn new things? Are you able to meet people with mito? This last question I'm very curious about because I have never met anyone with mito in "real" life and the idea of seeing lots of people with mito, all at once, boggles my mind!

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Rachel- I have abnormalities in Complex I,II, and V. I also married a wonderful man on June 5, 2010.
Tina_EvesMum's picture

Oh how I would love to get

Submitted by Tina_EvesMum on Tue, 06/23/2009 - 5:58pm.

Oh how I would love to get to a conference for Mito..to be in a room where people actually know and understand the issues. To talk to Drs who see what I do. We are going to a CdLS conference in July and I am so looking forward to that..my eldest daughter has CdLS and it is also a rare disorder. IT means so much to our support to be with people who know and understand just for that short space of time. If only there was a Mito place to go in the UK! hugs
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Tina Mum of 5 children Eve has just been given a suspected diagnosis of Mitochondrial Cytopathy.

I do not know what the future holds but I am glad I know who holds the future!