Need hepl finding iv and feeding backpaks

Hi Cynthia. does your 24 hour feed pump not come with a back pack? Ours did but actually we found it to restrictive, We bought a large child's rucksack and sewed in a hook at the top to hang the feed bag from to keep it the right way up, the pump will work whichever way round it is so long as the tubing isnt kinked and the feed bag is the right way up...ie with the feed tube coming from the bottom. This works great for us it hangs on the back of Eve's chair. As for the IV is that for TPN? I am not sure how you will deal with that as TPN has to be protected from light and heat too. We only dealt with that for a very short time and had an IV pole on the Wheelchair and an orange opaque thermal bag that went over the TPN bag...trying to lead as normal a life as possible with so many attatchments is a challenge but a challenge worth rising too. When our children have a limited prognosis it is so important to the whole family to access life as fully as possible. Building memories and enusring the best quality of life for our children for the time they have. Snding you much love

I would contact your home enteral nutrition place (our is Apria and ask them for solutions. Ours came with a bag.

Here are a few "outside-the-box" suggestions for you... If your child is crawling, put the bags into a Fisher Price School Bus, attach a pet leash to the bus and use the clip end to clip onto part of your child's clothing (clips nicely to a big diaper pin placed at waist-height in the back.) Make sure to tape several stress loops in both enteral and IV tubing, and make sure the pet leash is much shorter than the tubing. If your child is walking, put the feed/pump backpack into a baby carriage or toy shopping cart. Steadier walkers may prefer a wheeled suitcase or backpack with wheels and a handle. The Zevex Infinity backpack that fits either a 500ml or 1200ml bag can easily hold an enteral pump in front and parenteral pump in back. I can squeeze a 2-liter TPN bag into the back compartment. The weight is likely too much, though. You may consider starting the TPN/hydration at bedtime so that the bag is much lighter by morning, or you could ask your infusion company to split the TPN into 2 lighter bags. No matter how old your child is, it's a good idea to check out Vygon Curly tubing. This extension tubing resembles a very thin telephone cord, which allows sone "give" and reduces pulling on the site, which will happen when your son forgets to bring the bag with him. (note that I didn't write "if," I wrote "when,"BTDT!) Best of luck to you both, Heidi C "red-tape", J feeds and IV nutrition/hydration for 5 years