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Just thought Id say hello. I hope its OK to join your forum as Im from the UK and so far this site has helped me a lot since being diagnosed with mitochondria myopathy last year which is on top of a diagnosis of GA2 that I was given four years ago.I also have a son who is being tested as hes been ill with fatigue and other symptoms for 8 years.
I am paralysed as a result of the mito and GA2 as well as partially sighted and since the last crisis my hearing is now affected. Im finding it a very lonely time as there is little info on how to treat and manage things daily and Im mainly learning by error and finding out the hard way.
Im hoping to pick up tips from others on here and would love to make new friends who understand the constrints of living with mito.
Im looing k forward to reading all the information.