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His Dr's are discussing putting a gtube in him. We are waiting to hear back from the gastroentonolgist. Any insights or thoughts from...
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I'd love to hear about support groups. Are we allowed to post that sort of thing?
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Hi Michael: I'm on my third day of the cocktail. I'm waiting for that surge of energy :) I hear it takes a couple of months to improve....
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I'm brand new. I was just diagnosed this week and am getting used to the 40 pills per day. The diet thing is proving to be the hard part...
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I am 5 years in this although I was diagnosed last march. I am on a cane. have been for the last year. I am 52 so you are progressing...
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Medical Questions and Concerns

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	Topic	Replies	Last reply
Normal topic	NAC By arktjk 3 years 10 months ago	1	By lorimar 3 years 10 months ago
Normal topic	Tylenol versus Ibuprofen By arktjk 3 years 10 months ago	9	By beck7422 3 years 10 months ago
Normal topic	seizure meds with mito. By Koltonsmom 3 years 12 months ago	4	By arktjk 3 years 10 months ago
Normal topic	g-tube feeding issues By Anthonys mom 3 years 11 months ago	8	By khawlah 3 years 10 months ago
Normal topic	Confused By Tina_EvesMum 3 years 11 months ago	2	By beck7422 3 years 11 months ago
Hot topic	Diarrhea By Anthonys mom 4 years 2 weeks ago	16	By Anthonys mom 3 years 11 months ago
Normal topic	Good docs for mito management in FL or the southeast? Or anywhere, LOL? By lindsayknops 4 years 2 weeks ago	10	By lindsayknops 3 years 11 months ago
Normal topic	Leigh's By Tina_EvesMum 3 years 11 months ago	1	By cellolover 3 years 11 months ago
Normal topic	refusing food By Koltonsmom 4 years 3 days ago	3	By Koltonsmom 4 years 8 hours ago
Normal topic	GI question By khawlah 4 years 4 days ago	5	By khawlah 4 years 3 days ago
Normal topic	Emotional reactions? By Anthonys mom 4 years 2 weeks ago	5	By beck7422 4 years 1 week ago
Normal topic	blood clots/anemia By dancer21 4 years 1 week ago	1	By Tina_EvesMum 4 years 1 week ago
Normal topic	Question regarding psychiatric symptoms By jdarrag1 4 years 3 weeks ago	5	By cellolover 4 years 1 week ago
Normal topic	TPN, anemia, children and mito By RegBrigidMom 4 years 2 weeks ago	0	n/a
Normal topic	heat intolerance By dancer21 4 years 3 weeks ago	5	By lorimar 4 years 2 weeks ago
Normal topic	Trial and Error, or success or maybe???? By Tina_EvesMum 4 years 1 month ago	4	By lorimar 4 years 4 weeks ago
Hot topic	The future By deanssister 4 years 2 months ago	22	By mitomomx2 4 years 4 weeks ago
Normal topic	Your thoughts please By Tina_EvesMum 4 years 4 weeks ago	2	By Tina_EvesMum 4 years 4 weeks ago
Normal topic	Lethargy/Heart Rate/Oxygen and weight loss/feeds By Tina_EvesMum 4 years 1 month ago	2	By lorimar 4 years 1 month ago
Normal topic	Question about elemental formulas By khawlah 4 years 2 months ago	5	By lorimar 4 years 1 month ago
Normal topic	gas pain - tried everything By ilovecodybug 4 years 2 months ago	4	By beck7422 4 years 1 month ago
Normal topic	j tube vs. central line By dancer21 4 years 2 months ago	5	By janice 4 years 2 months ago
Normal topic	j tube vs. central line By dancer21 4 years 2 months ago	0	n/a
Normal topic	B2 Riboflavin for kids By Adairfamily5 4 years 2 months ago	1	By janice 4 years 2 months ago
Normal topic	Meds to avoid? By polatty 4 years 2 months ago	1	By MotherWhimsey 4 years 2 months ago

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