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If I were you, I'd have Woodlands Medical Center as my PCP! Those guys are wonderful. I bet they can get you some more strength. I'll be...
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His Dr's are discussing putting a gtube in him. We are waiting to hear back from the gastroentonolgist. Any insights or thoughts from...
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I'd love to hear about support groups. Are we allowed to post that sort of thing?
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Hi Michael: I'm on my third day of the cocktail. I'm waiting for that surge of energy :) I hear it takes a couple of months to improve....
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I'm brand new. I was just diagnosed this week and am getting used to the 40 pills per day. The diet thing is proving to be the hard part...
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Medical Questions and Concerns

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	Topic	Replies	Last reply
Normal topic	event monitor By MotherWhimsey 4 years 10 months ago	8	By MotherWhimsey 4 years 9 months ago
Normal topic	floppiness By MotherWhimsey 4 years 9 months ago	3	By Tina_EvesMum 4 years 9 months ago
Normal topic	mito cocktail By jennygreenlee 4 years 9 months ago	0	n/a
Normal topic	Heart block By MotherWhimsey 4 years 9 months ago	4	By jennygreenlee 4 years 8 months ago
Normal topic	sleep disruption By stperron 4 years 9 months ago	5	By stperron 4 years 8 months ago
Normal topic	hip subluxztion/ortho problems By Cristy Balcells 4 years 8 months ago	5	By kayjay 4 years 8 months ago
Normal topic	Iron deficiency and anemia By pickledfairy 4 years 8 months ago	0	n/a
Normal topic	Complex I Complex IV Mito Disease By val4221 4 years 7 months ago	1	By whelmka 4 years 7 months ago
Normal topic	Tips for Planned Hospital Stays By kayjay 4 years 7 months ago	0	n/a
Normal topic	Autonomic Cardio By stperron 4 years 7 months ago	9	By kayjay 4 years 7 months ago
Normal topic	7 year old with complex l and lll defect By keefe 4 years 7 months ago	8	By kayjay 4 years 7 months ago
Normal topic	complex 1 By Anthonys mom 4 years 6 months ago	3	By Tina_EvesMum 4 years 6 months ago
Normal topic	Eosinophil Esophagitis By Anthonys mom 4 years 10 months ago	5	By jadesmom 4 years 5 months ago
Normal topic	Birth parent information By Tina_EvesMum 4 years 5 months ago	0	n/a
Normal topic	mtDNA results Question By beccat1974 4 years 5 months ago	0	n/a
Normal topic	over exertion related to gastric issues????? Sorry long and waffly By Tina_EvesMum 4 years 5 months ago	2	By MotherWhimsey 4 years 5 months ago
Normal topic	6 month old with dysautonomia? By mrs.kendall 4 years 4 months ago	3	By mrs.kendall 4 years 4 months ago
Normal topic	seizures with Melas By jholler 4 years 4 months ago	3	By Lils mom 4 years 4 months ago
Normal topic	Worried and unsure By Tina_EvesMum 4 years 4 months ago	9	By Lils mom 4 years 4 months ago
Normal topic	Heart Involvement With Mitochondrial Myopathy By Tina_EvesMum 4 years 4 months ago	1	By MotherWhimsey 4 years 4 months ago
Normal topic	SLEEPING and Mito By erint617 4 years 3 months ago	1	By khawlah 4 years 3 months ago
Normal topic	Meds to avoid? By polatty 4 years 3 months ago	1	By MotherWhimsey 4 years 3 months ago
Normal topic	B2 Riboflavin for kids By Adairfamily5 4 years 3 months ago	1	By janice 4 years 3 months ago
Normal topic	j tube vs. central line By dancer21 4 years 3 months ago	0	n/a
Normal topic	j tube vs. central line By dancer21 4 years 3 months ago	5	By janice 4 years 3 months ago

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