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Re:Daughter Bria

Posted: October 9th 2009

Bria07

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Hi,

I just joined this forum. My daughters name is Bria and she is 20 months old. She was recently diagnosed with Leighs Syndrome. She has an older brother who is 10 which is perfectly fine.

We are a family of four and we joined this group to get support from other families who are going through this same situation with their children. Please feel free to email me at Bria1999@aol.com or you can check out our myspace page at www.myspace.com/ibenavides. There you can see pictures of Bria. Good night and take care.

 

Ida

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Ida Benavides
mitoscottie's picture

Hi Ida; Welcome to

Submitted by mitoscottie on Sun, 12/06/2009 - 7:52am.

Hi Ida; Welcome to "Mitovia", where all of us who live with Mito understand! There is a support group on the internet mostly used by parents of children diagnosed with Mito (Leigh's as well as so many other types of Mito). You can join the group by going to . You will find a lot of discussion and useful ideas there AND you can ask questions and people will answer. Jean Shepherd
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Jean Shepherd

British Columbia, Canada