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Sjogren's, FM and now Mito :( waaaaa!
Hi y'all, I was diagnosed with Sjogren's Syndrome 3 years ago, then fibromyalgia about a year and a half ago. This past August, I was diagnosed with Mito failure - still undergoing diagnostics to find out what that failure is.
I have started on ATP/Glutathione injections, ATP sublinguals, CoQ10, Acetyl L-Carnitine, Creatine and D-ribose for the mito. These supplements have resolved my FM pain - so thinking that was misdiagnoses.
For the Sjogren’s treatment, I’m on Plaquenil and Low-Dose Naltrexone and for arthritis; I’m on Naproxen (which I’m learning is bad for mito), so looking to you folks to tell me a good alternative to keep the inflammation down.
I’m 45 and sick-and-tired of being sick-and-tired. The new treatment has really been helping me, but I’m facing a few issues that have me really concerned. 1) hypoglycemia – I’m waking up some mornings in a severe glucose crisis and would love to know how to handle his better. 2) The new treatment is helping with this, but my BP is low. I was averaging in the 80’s/60’s with sudden drops into the 50’s/40’s. With the treatment, I am averaging 90’s/70’s but can’t seem to get it any higher than that. Still learning what I need to watch out for regarding cardiac issues with his disease.
I also have two sons. One seems to be doing pretty well, my 23 yr. old. My eldest son, 25 yr. old – gets fatigued easily and getting him in to the doctor is a real trial. I have a bad feeling he has this as well. I bought him a set of supplements – the same I am on sans the ATP injections/pills and his energy is improving (horrified).
Love and strength to you all <3