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Sleep apnea treatment concerns
By morgans mom on 09/08/2011
My daughter is 6 yrs old, suspected mito disorder. Recent sleep study shows severe obstructive sleep apnea. ENT recommends tonsillectomy though tonsils are pretty normal sized but "they are there so need to be out." Neuro is concerned that the cause of the OSA is hypotonia instead of mechanical obstruction and recommended pulmonology evaluation for consideration for bipap. He's also concerned about the risks of anesthesia with mito and that the surgery may not fix the problem. Saw pulm today and he is going with the standard treatment of sleep apnea in kids - take out the tonsils/adenoids and if there's still a problem then treat with CPAP... said since she did fine with anesthesia for another procedure that she should do fine with future anesthesia... He has little experience with mito and I'm not sure I'm comfortable with that take on things. Anyone with experience with this? Suggestions? Concerns??? I've booked a 2nd opinion consultation which will take place in Oct and in the mean-time we're starting cpap.