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speech loss with MELAS

Posted: February 18th 2010

flaherty66

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My son is 9 years old and has MELAS. He has had several strokes. The most recent one has left him without his speech. He has also been having facial twitches or focal seizures. Has anyone had any experience with these symptoms?

Yes I have. If you would

Submitted by arktjk on Sat, 02/20/2010 - 11:19pm.

Yes I have. If you would like to talk further, please email me at arktjk@comcast.net. (We have MELAS in the family and plenty of experience to share). Beth
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There is MELAS in my family

Submitted by CherylS on Sat, 02/27/2010 - 2:56am.

There is MELAS in my family as well.  I'd enjoy sharing experiences with both of you.  I'm available to discuss further if you'd like..  sacinhbg@yahoo.com.